“If he doesn’t buy in, it’s a waste of time”: Perspectives from diverse parents and adolescents on engaging children in ADHD treatment

Engaging children and adolescents in ADHD care is critical for future independent disease management. However, there is a lack of evidence guiding health professionals and parents on how best to engage their children and adolescents in ADHD care. We recruited 41 diverse parents of children and adole...

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Bibliographic Details
Published in:Child psychiatry and human development 2024-10, Vol.55 (5), p.1190-1200
Main Authors: Zolli, Nicole, Loubeau, J. Krystel, Sikov, Jennifer, Baul, Tithi D., Hasan, Syeda, Rosen, Katherine, Buonocore, Olivia, Rabin, Megan, Duncan, Alison, Fortuna, Lisa, Borba, Christina P.C., Silverstein, Michael, Spencer, Andrea E.
Format: Article
Language:English
Subjects:
Adolescent
Adolescents
Adult
Apathy
Attention Deficit Disorder with Hyperactivity - therapy
Attention deficit hyperactivity disorder
Behavioral Science and Psychology
Child
Child & adolescent psychiatry
Child and School Psychology
Children
Children & youth
Disease management
Empowerment
Female
Hospitals
Humans
Interviews
Male
Medical personnel
Original Article
Parents
Parents & parenting
Patient Acceptance of Health Care
Psychiatry
Psychology
Qualitative Research
Questionnaires
Self Concept
Self esteem
Teenagers
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Summary:Engaging children and adolescents in ADHD care is critical for future independent disease management. However, there is a lack of evidence guiding health professionals and parents on how best to engage their children and adolescents in ADHD care. We recruited 41 diverse parents of children and adolescents with ADHD and 11 adolescents with ADHD from an urban, safety-net hospital to participate in in-depth, semi-structured qualitative interviews and then analyzed this data using thematic analysis. Children’s level of illness insight about ADHD and self-esteem emerged as two major contributors to engagement of children and adolescents in ADHD care, and their intersection created four styles of engagement: proactive (high insight, high self-esteem), anxious (high insight, low self-esteem), apathetic (low insight, high self-esteem), and resistant (low insight, low self-esteem). This framework can help health professionals engage children and adolescents in care for ADHD and guide development of interventions to improve engagement in care.
ISSN:0009-398X
1573-3327
1573-3327
DOI:10.1007/s10578-022-01473-x