Using an Empathetic Approach to Explore Technology Readiness and Needs for Digital Services to Assist People with Dementia

• Published in: International journal of environmental research and public health 2024-08, Vol.21 (8), p.1023
• Main Authors: Engblad, Mille Aagaard, Herstal, Emilie Pind, Wegener, Emilie Kauffeldt, Kayser, Lars
• Format: Article
• Language: English
• Subjects: Aged; Aged, 80 and over; Caregiver burden; Caregivers; Caregivers - psychology; Cognition; Cognitive ability; Communication; Dementia; Dementia - psychology; Dementia - therapy; Design; Empathy; Female; Health Literacy; Humans; Interviews; Male; Medical technology; Middle Aged; Nursing homes; Qualitative Research; Recruitment; Social exclusion; Social integration; Social networks; Social Support; Support networks; Technology; Well being
• ISSN: 1660-4601; 1661-7827; 1660-4601
• DOI: 10.3390/ijerph21081023

This qualitative study investigates technology readiness, i.e., self-management, social support, and digital health literacy, in people with dementia (PwD). PwD are difficult to recruit; therefore, we used an empathic approach to recruit and conduct interviews. The interviews with seven participants with dementia and two informal caregivers, guided by the READHY framework, reveal nuanced insights into their experiences. Participants demonstrate varying degrees of self-management, with informal caregivers playing pivotal roles in facilitating activities and supporting overall well-being. Cognitive challenges, such as concentration and communication difficulties, are prevalent, highlighting the importance of robust support systems. Internal and external support networks significantly influence social integration, yet societal misconceptions impede inclusion, exacerbating feelings of isolation for both participants and caregivers. Limited interaction with technology is observed, primarily reliant on caregivers for assistance. Technology may hold potential for enhancing independence and alleviating caregiver burden. As an empathetic approach eased recruitment and communication with PwD, we recommend using this approach for future studies to include participants who otherwise would not be recruited. Given that the number of participants in this study is limited to only seven PwD with moderate to severe cognitive impairment, further investigation using mixed methods, including the READHY framework, and a larger number of participants is needed to examine the generalizability of the findings.