Discordant Perception of Disease Activity Between Providers and Adolescents with Systemic Lupus Erythematosus: A Cohort Study

Discordance in perception of disease activity between adolescent patients with lupus and their providers may influence disease outcomes. We found that patients endorsed higher perceptions of disease activity than providers. Discordance was present at all levels of disease activity, particularly in p...

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Bibliographic Details
Published in:The Journal of pediatrics 2024-11, Vol.274, p.114216-114216, Article 114216
Main Authors: Mian, Zanab, Calistro, Terrence, Rapoza, Kimberly, Berkowitz, Shari Salzhauer, Rubinstein, Tamar B, Walters, Heather M., Eberhard, B. Anne, Kenney-Riley, Kathleen, Hui-Yuen, Joyce S.
Format: Article
Language:English
Subjects:
Adolescent
Child
Cohort Studies
discordance
Female
Humans
Lupus Erythematosus, Systemic - psychology
Male
Mycophenolic Acid - therapeutic use
outcome measures
Pediatric rheumatology
Perception
Severity of Illness Index
systemic lupus erythematosus
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Summary:Discordance in perception of disease activity between adolescent patients with lupus and their providers may influence disease outcomes. We found that patients endorsed higher perceptions of disease activity than providers. Discordance was present at all levels of disease activity, particularly in patients with high activity, nephritis, and/or taking corticosteroids or mycophenolate mofetil.
ISSN:0022-3476
1097-6833
1097-6833
DOI:10.1016/j.jpeds.2024.114216