Validation of an abbreviated adherence measure for young people with Type 1 diabetes

• Published in: Diabetic medicine 2011-09, Vol.28 (9), p.1113-1117
• Main Authors: Markowitz, J. T., Laffel, L. M. B., Volkening, L. K., Anderson, B. J., Nansel, T. R., Weissberg-Benchell, J., Wysocki, T.
• Format: Article
• Language: English
• Subjects: adherence; Adolescent; Biological and medical sciences; Blood Glucose; Blood Glucose Self-Monitoring; Child; Diabetes Mellitus, Type 1 - drug therapy; Diabetes Mellitus, Type 1 - psychology; Diabetes. Impaired glucose tolerance; Diet, Diabetic - psychology; Endocrine pancreas. Apud cells (diseases); Endocrinopathies; Etiopathogenesis. Screening. Investigations. Target tissue resistance; Feeding. Feeding behavior; Female; Fundamental and applied biological sciences. Psychology; Humans; Male; Medical sciences; Medication Adherence - psychology; paediatrics; Parents - psychology; Quality of Life - psychology; Self Care; Surveys and Questionnaires; Type 1 diabetes; Vertebrates: anatomy and physiology, studies on body, several organs or systems; Vertebrates: endocrinology
• ISSN: 0742-3071; 1464-5491
• DOI: 10.1111/j.1464-5491.2011.03321.x

Diabet. Med. 28, 1113–1117 (2011) Aims  Adherence to diabetes‐related tasks is an important construct. The Diabetes Self‐Management Profile is a validated, semi‐structured interview assessing adherence in paediatric patients with Type 1 diabetes. We created and validated a brief questionnaire version of the Diabetes Self‐Management Profile called the Diabetes Self‐Management Questionnaire. Methods  Young people with Type 1 diabetes, ages 9–15 years (n = 338) and their parents provided data from chart review, interview and questionnaires. Results  Diabetes Self‐Management Questionnaire scores correlated significantly with Diabetes Self‐Management Profile scores, HbA1c, blood glucose monitoring frequency and other measures associated with adherence and/or glycaemic control (P ≤ 0.01 for all). Young people and parent scores were correlated (r = 0.55, P