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Validation of an abbreviated adherence measure for young people with Type 1 diabetes

Diabet. Med. 28, 1113–1117 (2011) Aims  Adherence to diabetes‐related tasks is an important construct. The Diabetes Self‐Management Profile is a validated, semi‐structured interview assessing adherence in paediatric patients with Type 1 diabetes. We created and validated a brief questionnaire versio...

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Published in:Diabetic medicine 2011-09, Vol.28 (9), p.1113-1117
Main Authors: Markowitz, J. T., Laffel, L. M. B., Volkening, L. K., Anderson, B. J., Nansel, T. R., Weissberg-Benchell, J., Wysocki, T.
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container_end_page 1117
container_issue 9
container_start_page 1113
container_title Diabetic medicine
container_volume 28
creator Markowitz, J. T.
Laffel, L. M. B.
Volkening, L. K.
Anderson, B. J.
Nansel, T. R.
Weissberg-Benchell, J.
Wysocki, T.
description Diabet. Med. 28, 1113–1117 (2011) Aims  Adherence to diabetes‐related tasks is an important construct. The Diabetes Self‐Management Profile is a validated, semi‐structured interview assessing adherence in paediatric patients with Type 1 diabetes. We created and validated a brief questionnaire version of the Diabetes Self‐Management Profile called the Diabetes Self‐Management Questionnaire. Methods  Young people with Type 1 diabetes, ages 9–15 years (n = 338) and their parents provided data from chart review, interview and questionnaires. Results  Diabetes Self‐Management Questionnaire scores correlated significantly with Diabetes Self‐Management Profile scores, HbA1c, blood glucose monitoring frequency and other measures associated with adherence and/or glycaemic control (P ≤ 0.01 for all). Young people and parent scores were correlated (r = 0.55, P 
doi_str_mv 10.1111/j.1464-5491.2011.03321.x
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T. ; Laffel, L. M. B. ; Volkening, L. K. ; Anderson, B. J. ; Nansel, T. R. ; Weissberg-Benchell, J. ; Wysocki, T.</creator><creatorcontrib>Markowitz, J. T. ; Laffel, L. M. B. ; Volkening, L. K. ; Anderson, B. J. ; Nansel, T. R. ; Weissberg-Benchell, J. ; Wysocki, T.</creatorcontrib><description>Diabet. Med. 28, 1113–1117 (2011) Aims  Adherence to diabetes‐related tasks is an important construct. The Diabetes Self‐Management Profile is a validated, semi‐structured interview assessing adherence in paediatric patients with Type 1 diabetes. We created and validated a brief questionnaire version of the Diabetes Self‐Management Profile called the Diabetes Self‐Management Questionnaire. Methods  Young people with Type 1 diabetes, ages 9–15 years (n = 338) and their parents provided data from chart review, interview and questionnaires. Results  Diabetes Self‐Management Questionnaire scores correlated significantly with Diabetes Self‐Management Profile scores, HbA1c, blood glucose monitoring frequency and other measures associated with adherence and/or glycaemic control (P ≤ 0.01 for all). Young people and parent scores were correlated (r = 0.55, P &lt; 0.0001). The Diabetes Self‐Management Questionnaire demonstrated modest internal consistency (Cronbach’s α = 0.59), adequate for a brief measure of multidimensional adherence. In addition, factor analysis confirmed one factor. Conclusions  This brief adherence questionnaire demonstrated construct validity in young people 9–15 years old and their parents and may have utility in clinical and research settings.</description><identifier>ISSN: 0742-3071</identifier><identifier>EISSN: 1464-5491</identifier><identifier>DOI: 10.1111/j.1464-5491.2011.03321.x</identifier><identifier>PMID: 21843307</identifier><identifier>CODEN: DIMEEV</identifier><language>eng</language><publisher>Oxford, UK: Blackwell Publishing Ltd</publisher><subject>adherence ; Adolescent ; Biological and medical sciences ; Blood Glucose ; Blood Glucose Self-Monitoring ; Child ; Diabetes Mellitus, Type 1 - drug therapy ; Diabetes Mellitus, Type 1 - psychology ; Diabetes. Impaired glucose tolerance ; Diet, Diabetic - psychology ; Endocrine pancreas. Apud cells (diseases) ; Endocrinopathies ; Etiopathogenesis. Screening. Investigations. Target tissue resistance ; Feeding. Feeding behavior ; Female ; Fundamental and applied biological sciences. Psychology ; Humans ; Male ; Medical sciences ; Medication Adherence - psychology ; paediatrics ; Parents - psychology ; Quality of Life - psychology ; Self Care ; Surveys and Questionnaires ; Type 1 diabetes ; Vertebrates: anatomy and physiology, studies on body, several organs or systems ; Vertebrates: endocrinology</subject><ispartof>Diabetic medicine, 2011-09, Vol.28 (9), p.1113-1117</ispartof><rights>2011 The Authors. Diabetic Medicine © 2011 Diabetes UK</rights><rights>2015 INIST-CNRS</rights><rights>2011 The Authors. Diabetic Medicine © 2011 Diabetes UK.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4711-fff7cc84fd07e72c89a43d730afe1467804e1cb06f3d2b1c2da5919c62ccda493</citedby><cites>FETCH-LOGICAL-c4711-fff7cc84fd07e72c89a43d730afe1467804e1cb06f3d2b1c2da5919c62ccda493</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>230,314,780,784,885,27924,27925</link.rule.ids><backlink>$$Uhttp://pascal-francis.inist.fr/vibad/index.php?action=getRecordDetail&amp;idt=24428457$$DView record in Pascal Francis$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/21843307$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Markowitz, J. T.</creatorcontrib><creatorcontrib>Laffel, L. M. B.</creatorcontrib><creatorcontrib>Volkening, L. K.</creatorcontrib><creatorcontrib>Anderson, B. J.</creatorcontrib><creatorcontrib>Nansel, T. R.</creatorcontrib><creatorcontrib>Weissberg-Benchell, J.</creatorcontrib><creatorcontrib>Wysocki, T.</creatorcontrib><title>Validation of an abbreviated adherence measure for young people with Type 1 diabetes</title><title>Diabetic medicine</title><addtitle>Diabet Med</addtitle><description>Diabet. Med. 28, 1113–1117 (2011) Aims  Adherence to diabetes‐related tasks is an important construct. The Diabetes Self‐Management Profile is a validated, semi‐structured interview assessing adherence in paediatric patients with Type 1 diabetes. We created and validated a brief questionnaire version of the Diabetes Self‐Management Profile called the Diabetes Self‐Management Questionnaire. Methods  Young people with Type 1 diabetes, ages 9–15 years (n = 338) and their parents provided data from chart review, interview and questionnaires. Results  Diabetes Self‐Management Questionnaire scores correlated significantly with Diabetes Self‐Management Profile scores, HbA1c, blood glucose monitoring frequency and other measures associated with adherence and/or glycaemic control (P ≤ 0.01 for all). Young people and parent scores were correlated (r = 0.55, P &lt; 0.0001). The Diabetes Self‐Management Questionnaire demonstrated modest internal consistency (Cronbach’s α = 0.59), adequate for a brief measure of multidimensional adherence. In addition, factor analysis confirmed one factor. Conclusions  This brief adherence questionnaire demonstrated construct validity in young people 9–15 years old and their parents and may have utility in clinical and research settings.</description><subject>adherence</subject><subject>Adolescent</subject><subject>Biological and medical sciences</subject><subject>Blood Glucose</subject><subject>Blood Glucose Self-Monitoring</subject><subject>Child</subject><subject>Diabetes Mellitus, Type 1 - drug therapy</subject><subject>Diabetes Mellitus, Type 1 - psychology</subject><subject>Diabetes. Impaired glucose tolerance</subject><subject>Diet, Diabetic - psychology</subject><subject>Endocrine pancreas. Apud cells (diseases)</subject><subject>Endocrinopathies</subject><subject>Etiopathogenesis. Screening. Investigations. Target tissue resistance</subject><subject>Feeding. Feeding behavior</subject><subject>Female</subject><subject>Fundamental and applied biological sciences. Psychology</subject><subject>Humans</subject><subject>Male</subject><subject>Medical sciences</subject><subject>Medication Adherence - psychology</subject><subject>paediatrics</subject><subject>Parents - psychology</subject><subject>Quality of Life - psychology</subject><subject>Self Care</subject><subject>Surveys and Questionnaires</subject><subject>Type 1 diabetes</subject><subject>Vertebrates: anatomy and physiology, studies on body, several organs or systems</subject><subject>Vertebrates: endocrinology</subject><issn>0742-3071</issn><issn>1464-5491</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2011</creationdate><recordtype>article</recordtype><recordid>eNqNkcuO0zAUhi0EYsrAKyBvEKsE33JbgATDTEEql8XQWVonzvHUJU2Cncy0u5F4U56EhJYCO7yxpf_7j885PyGUs5iP58U65ipVUaIKHgvGecykFDze3iOzo3CfzFimRCRZxk_IoxDWjHFRyOIhORE8V3IUZmS5hNpV0Lu2oa2l0FAoS483DnqsKFQr9NgYpBuEMHiktvV01w7NNe2w7Wqkt65f0ctdhz_uvnNaOSixx_CYPLBQB3xyuE_Jl4vzy7N30eLT_P3Z60VkVMZ5ZK3NjMmVrViGmTB5AUpWmWRgcRwky5lCbkqWWlmJkhtRQVLwwqTCmApUIU_Jq33dbig3WBlseg-17rzbgN_pFpz-V2ncSl-3N3qcnrE0Hws8PxTw7bcBQ683Lhisa2iwHYLOc8WFUDIZyXxPGt-G4NEef-FMT6notZ6Wr6fl6ykV_SsVvR2tT__u8mj8HcMIPDsAEAzU1kNjXPjDKSVylUzcyz1362rc_XcD-u2H8-k1-qO934Uet0c_-K86zWSW6KuPcz2_Wi6Wb5JCf5Y_AdKauf8</recordid><startdate>201109</startdate><enddate>201109</enddate><creator>Markowitz, J. 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Psychology</topic><topic>Humans</topic><topic>Male</topic><topic>Medical sciences</topic><topic>Medication Adherence - psychology</topic><topic>paediatrics</topic><topic>Parents - psychology</topic><topic>Quality of Life - psychology</topic><topic>Self Care</topic><topic>Surveys and Questionnaires</topic><topic>Type 1 diabetes</topic><topic>Vertebrates: anatomy and physiology, studies on body, several organs or systems</topic><topic>Vertebrates: endocrinology</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Markowitz, J. T.</creatorcontrib><creatorcontrib>Laffel, L. M. B.</creatorcontrib><creatorcontrib>Volkening, L. K.</creatorcontrib><creatorcontrib>Anderson, B. J.</creatorcontrib><creatorcontrib>Nansel, T. R.</creatorcontrib><creatorcontrib>Weissberg-Benchell, J.</creatorcontrib><creatorcontrib>Wysocki, T.</creatorcontrib><collection>Istex</collection><collection>Pascal-Francis</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>Diabetic medicine</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Markowitz, J. T.</au><au>Laffel, L. M. B.</au><au>Volkening, L. K.</au><au>Anderson, B. J.</au><au>Nansel, T. R.</au><au>Weissberg-Benchell, J.</au><au>Wysocki, T.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Validation of an abbreviated adherence measure for young people with Type 1 diabetes</atitle><jtitle>Diabetic medicine</jtitle><addtitle>Diabet Med</addtitle><date>2011-09</date><risdate>2011</risdate><volume>28</volume><issue>9</issue><spage>1113</spage><epage>1117</epage><pages>1113-1117</pages><issn>0742-3071</issn><eissn>1464-5491</eissn><coden>DIMEEV</coden><abstract>Diabet. Med. 28, 1113–1117 (2011) Aims  Adherence to diabetes‐related tasks is an important construct. The Diabetes Self‐Management Profile is a validated, semi‐structured interview assessing adherence in paediatric patients with Type 1 diabetes. We created and validated a brief questionnaire version of the Diabetes Self‐Management Profile called the Diabetes Self‐Management Questionnaire. Methods  Young people with Type 1 diabetes, ages 9–15 years (n = 338) and their parents provided data from chart review, interview and questionnaires. Results  Diabetes Self‐Management Questionnaire scores correlated significantly with Diabetes Self‐Management Profile scores, HbA1c, blood glucose monitoring frequency and other measures associated with adherence and/or glycaemic control (P ≤ 0.01 for all). Young people and parent scores were correlated (r = 0.55, P &lt; 0.0001). The Diabetes Self‐Management Questionnaire demonstrated modest internal consistency (Cronbach’s α = 0.59), adequate for a brief measure of multidimensional adherence. In addition, factor analysis confirmed one factor. Conclusions  This brief adherence questionnaire demonstrated construct validity in young people 9–15 years old and their parents and may have utility in clinical and research settings.</abstract><cop>Oxford, UK</cop><pub>Blackwell Publishing Ltd</pub><pmid>21843307</pmid><doi>10.1111/j.1464-5491.2011.03321.x</doi><tpages>5</tpages><oa>free_for_read</oa></addata></record>
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source Wiley
subjects adherence
Adolescent
Biological and medical sciences
Blood Glucose
Blood Glucose Self-Monitoring
Child
Diabetes Mellitus, Type 1 - drug therapy
Diabetes Mellitus, Type 1 - psychology
Diabetes. Impaired glucose tolerance
Diet, Diabetic - psychology
Endocrine pancreas. Apud cells (diseases)
Endocrinopathies
Etiopathogenesis. Screening. Investigations. Target tissue resistance
Feeding. Feeding behavior
Female
Fundamental and applied biological sciences. Psychology
Humans
Male
Medical sciences
Medication Adherence - psychology
paediatrics
Parents - psychology
Quality of Life - psychology
Self Care
Surveys and Questionnaires
Type 1 diabetes
Vertebrates: anatomy and physiology, studies on body, several organs or systems
Vertebrates: endocrinology
title Validation of an abbreviated adherence measure for young people with Type 1 diabetes
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