Effect of Pre-test Genetic Counseling for Deaf Adults on Knowledge of Genetic Testing

Empirical data on genetic counseling outcomes in the deaf population are needed to better serve this population. This study was an examination of genetics knowledge before and after culturally and linguistically appropriate pre-test genetic counseling in a diverse deaf adult sample. Individuals ≥18 ...

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Bibliographic Details
Published in:Journal of genetic counseling 2012-04, Vol.21 (2), p.256-272
Main Authors: Baldwin, Erin E., Boudreault, Patrick, Fox, Michelle, Sinsheimer, Janet S., Palmer, Christina G. S.
Format: Article
Language:English
Subjects:
Adult
Aetiology
Age
American Sign Language
Biomedicine
Clinical Psychology
Connexin 26
Connexin 30
Connexins - genetics
Data processing
Deaf
Deafness
Deafness - genetics
Deafness - psychology
Ethics
Etiology
Female
Genetic counseling
Genetic counselling
Genetic data
Genetic screening
Genetic Testing
Genetics knowledge
GJB2
Gynecology
Human Genetics
Humans
Inventories
Language
Male
Middle Aged
Minority
Minority groups
Original Research
Public Health
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Summary:Empirical data on genetic counseling outcomes in the deaf population are needed to better serve this population. This study was an examination of genetics knowledge before and after culturally and linguistically appropriate pre-test genetic counseling in a diverse deaf adult sample. Individuals ≥18 years old with early-onset sensorineural deafness were offered connexin-26/30 testing and genetic counseling. Participants completed questionnaires containing 10 genetics knowledge items at baseline and following pre-test genetic counseling. The effects of genetic counseling, prior beliefs about etiology, and participant’s preferred language on genetics knowledge scores were assessed ( n  = 244). Pre-test genetic counseling ( p  = .0007), language ( p  
ISSN:1059-7700
1573-3599
DOI:10.1007/s10897-011-9398-1