Informatics and data quality at collaborative multicenter Breast and Colon Cancer Family Registries

Quality control and harmonization of data is a vital and challenging undertaking for any successful data coordination center and a responsibility shared between the multiple sites that produce, integrate, and utilize the data. Here we describe a coordinated effort between scientists and data manager...

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Bibliographic Details
Published in:Journal of the American Medical Informatics Association : JAMIA 2012-06, Vol.19 (e1), p.e125-e128
Main Authors: McGarvey, Peter B, Ladwa, Sweta, Oberti, Mauricio, Dragomir, Anca Dana, Hedlund, Erin K, Tanenbaum, David Michael, Suzek, Baris E, Madhavan, Subha
Format: Article
Language:English
Subjects:
Breast Neoplasms - epidemiology
Colonic Neoplasms - epidemiology
Databases, Factual - standards
Databases, Factual - statistics & numerical data
Humans
Quality Control
Registries - standards
Research and Applications
Research Design
United States
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Summary:Quality control and harmonization of data is a vital and challenging undertaking for any successful data coordination center and a responsibility shared between the multiple sites that produce, integrate, and utilize the data. Here we describe a coordinated effort between scientists and data managers in the Cancer Family Registries to implement a data governance infrastructure consisting of both organizational and technical solutions. The technical solution uses a rule-based validation system that facilitates error detection and correction for data centers submitting data to a central informatics database. Validation rules comprise both standard checks on allowable values and a crosscheck of related database elements for logical and scientific consistency. Evaluation over a 2-year timeframe showed a significant decrease in the number of errors in the database and a concurrent increase in data consistency and accuracy.
ISSN:1067-5027
1527-974X
DOI:10.1136/amiajnl-2011-000546