Reproductive Decisions in People With Sickle Cell Disease or Sickle Cell Trait

In the context of an inherited condition such as sickle cell disease (SCD), it is critical to understand how people with SCD or carriers (sickle cell trait [SCT]) face the challenges of making informed reproductive health decisions. The purpose of this analysis was to examine the beliefs, attitudes,...

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Bibliographic Details
Published in:Western journal of nursing research 2010-12, Vol.32 (8), p.1073-1090
Main Authors: Gallo, Agatha M., Wilkie, Diana, Suarez, Marie, Labotka, Richard, Molokie, Robert, Thompson, Alexis, Hershberger, Patricia, Johnson, Bonnye
Format: Article
Language:English
Subjects:
Anemia, Sickle Cell - genetics
Anemia, Sickle Cell - psychology
Attitude to Health
Attitudes
Belief & doubt
Carriers
Choice Behavior
Decision Making
Family planning
Female
Genetic Variation
Health Status
Hemoglobins - genetics
Humans
Male
Nursing
Parents
Pregnancy
Probability
Reproduction - physiology
Reproductive health
Sickle cell anaemia
Sickle cell disease
Sickle Cell Trait - genetics
Sickle Cell Trait - psychology
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Summary:In the context of an inherited condition such as sickle cell disease (SCD), it is critical to understand how people with SCD or carriers (sickle cell trait [SCT]) face the challenges of making informed reproductive health decisions. The purpose of this analysis was to examine the beliefs, attitudes, and personal feelings of people with sickle cell disease or sickle cell trait related to making informed reproductive health decisions. Three focus groups were conducted with a total of 15 people who had either SCD or SCT. Five themes were identified: health-related issues in sickle cell disease, testing for sickle cell trait, partner choice, sharing sickle cell status with partners, and reproductive options. These findings enhance understanding of the reproductive experiences in people with SCD and SCT and provide the groundwork for developing an educational intervention focused on making informed decisions about becoming a parent.
ISSN:0193-9459
1552-8456
DOI:10.1177/0193945910371482