The development of practice guidelines for independent living donor advocates

• Published in: Clinical transplantation 2013-03, Vol.27 (2), p.178-184
• Main Authors: Steel, Jennifer L., Dunlavy, Andrea, Friday, Maranda, Kingsley, Kendal, Brower, Deborah, Unruh, Mark, Tan, Henkie, Shapiro, Ron, Peltz, Mel, Hardoby, Melissa, McCloskey, Christina, Sturdevant, Mark, Humar, Abhinav
• Format: Article
• Language: English
• Subjects: Biological and medical sciences; Ethics; Fundamental and applied biological sciences. Psychology; Fundamental immunology; Health Care Surveys; Humans; Informed Consent - ethics; kidney donor; liver donor; living donation; living donor advocate; Living Donors - ethics; Medical sciences; Patient Advocacy - economics; Patient Advocacy - education; Patient Advocacy - ethics; Patient Advocacy - standards; Patient Participation; Practice Guidelines as Topic; Professional Role; Surgery (general aspects). Transplantations, organ and tissue grafts. Graft diseases; Tissue, organ and graft immunology; United States
• ISSN: 0902-0063; 1399-0012
• DOI: 10.1111/ctr.12112

Summary The practice recommendations discussed here are based on the findings of the national survey as well as the opinions of the authors. The recommendations that are proposed here are not exhaustive and are aspirational in intent and are likely to evolve with time. Practice guidelines are recommended for legal and regulatory issues (e.g., state or federal laws), consumer or public benefit (e.g., improving service delivery, avoiding harm to the patient, decreasing disparities in underserved or vulnerable populations), and for professional guidance (e.g., new role, professional risk management issues, advances in practice). Without such practice guidelines, donors, and indirectly the candidates, may be at increased risk for possible bias or undue harm.