Evolving approaches to the ethical management of genomic data

Highlights ► Ethical, Legal, and Social Implications (ELSI) in the genomic era. ► Frameworks and policies to meet ELSI challenges. ► Privacy concerns and the limits to consent. ► Transparency and engaging patients in genomic research.

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Bibliographic Details
Published in:Trends in genetics 2013-06, Vol.29 (6), p.375-382
Main Authors: McEwen, Jean E, Boyer, Joy T, Sun, Kathie Y
Format: Article
Language:English
Subjects:
data sharing
ethics
Genomics - ethics
Health Information Management - ethics
Health Information Management - trends
Humans
identifiability
informed consent
Informed Consent - ethics
Medical Education
Privacy
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Description
Summary:Highlights ► Ethical, Legal, and Social Implications (ELSI) in the genomic era. ► Frameworks and policies to meet ELSI challenges. ► Privacy concerns and the limits to consent. ► Transparency and engaging patients in genomic research.
ISSN:0168-9525
DOI:10.1016/j.tig.2013.02.001