Online activity and participation in treatment affects the perceived efficacy of social health networks among patients with chronic illness

• Published in: Journal of medical Internet research 2014-01, Vol.16 (1), p.e12-e12
• Main Authors: Magnezi, Racheli, Bergman, Yoav S, Grosberg, Dafna
• Format: Article
• Language: English
• Subjects: Adult; Age; Aged; Asthma; Behavior; Cardiovascular disease; Cardiovascular diseases; Care and treatment; Chronic Disease; Chronic diseases; Chronic illnesses; Chronic sickness; Consumer health information; Cross-Sectional Studies; Diabetes; Discussion groups; Disease management; Diseases; Efficacy; Empowerment; Female; Health; Health care; Health care networks; Health Care Services; Health information; Heart diseases; Hebrew language; Higher education; Humans; Hypertension; Injuries; Internet; Intervention; Kidney diseases; Knowledge; Male; Medical research; Medicine, Experimental; Middle Aged; Multiple sclerosis; Original Paper; Participation; Patient Participation; Patients; Perceptions; Program Evaluation; Questionnaires; Recruitment; Self-efficacy; Selfefficacy; Social Networks; Social Support; Spinal cord injuries; Support groups; Type 2 diabetes; Usefulness; Websites; Young Adult
• ISSN: 1438-8871; 1439-4456; 1438-8871
• DOI: 10.2196/jmir.2630

The use of online health-related social networks for support, peer-to-peer connections, and obtaining health information has increased dramatically. Participation in an online health-related social network can enhance patients' self-efficacy and empowerment, as they are given knowledge and tools to manage their chronic health condition more effectively. Thus, we can deduce that patient activation, the extent to which individuals are able to manage their own health care, also increases. However, little is known about the effects of participation in online health-related social networks and patient activation on the perceived usefulness of a website across disease groups. The intent of the study was to evaluate the effects and benefits of participation in an online health-related social network and to determine which variables predict perceived site usefulness, while examining patient activation. Data were collected from "Camoni", the first health-related social network in the Hebrew language. It offers medical advice, including blogs, forums, support groups, internal mail, chats, and an opportunity to consult with experts. This study focused on the site's five largest and most active communities: diabetes, heart disease, kidney disease, spinal injury, and depression/anxiety. Recruitment was conducted during a three-month period in which a link to the study questionnaire was displayed on the Camoni home page. Three questionnaires were used: a 13-item measure of perceived usefulness (Cronbach alpha=.93) to estimate the extent to which an individual found the website helpful and informative, a 9-item measure of active involvement in the website (Cronbach alpha=.84), and The Patient Activation Measure (PAM-13, Cronbach alpha=.86), which assesses a patient's level of active participation in his or her health care. There were 296 participants. Men 30-39 years of age scored higher in active involvement than those 40-49 years (P=.03), 50-64 years (P=.004), or 65+ years (P=.01). Respondents 20-29 years of age scored higher in perceived usefulness than those 50-64 years (P=.04) and those 65+ years (P=.049). Those aged 20-29 years scored significantly lower on the PAM-13 scale than those aged 30-39 years (P=.01) and 50-64 years (P=.049). Men and women had similar PAM-13 scores (F9,283=0.17, P=.76). Several variables were significant predictors of perceived usefulness. Age was a negative predictor; younger age was indicative of higher perceived usefulness. Active invol