Does desire for hastened death change in terminally ill cancer patients?

• Published in: Social science & medicine (1982) 2014-06, Vol.111, p.35-40
• Main Authors: Rosenfeld, Barry, Pessin, Hayley, Marziliano, Allison, Jacobson, Colleen, Sorger, Brooke, Abbey, Jennifer, Olden, Megan, Brescia, Robert, Breitbart, William
• Format: Article
• Language: English
• Subjects: Adult; Aged; Aged, 80 and over; Attitude to Death; Biological and medical sciences; Cancer; Death; Death Attitudes; Depression (Psychology); Desire for hastened death; End of life; Ethics; Female; Follow-Up Studies; Health services; Hospitals; Humans; Illness; Intervention; Male; Medical sciences; Mental health care; Middle Aged; Miscellaneous; Neoplasms - psychology; Neoplasms - therapy; Palliative Care; Patients; Pessimism; Public health. Hygiene; Public health. Hygiene-occupational medicine; Quality of life; Teaching. Deontology. Ethics. Legislation; Terminally Ill - psychology; Time Factors; U.S.A; Well Being
• ISSN: 0277-9536; 1873-5347
• DOI: 10.1016/j.socscimed.2014.03.027

Understanding why some terminally ill patients may seek a hastened death (a construct referred to as “desire for hastened death” or DHD) is critical to understanding how to optimize quality of life during an individual's final weeks, months or even years of life. Although a number of predictor variables have emerged in past DHD research, there is a dearth of longitudinal research on how DHD changes over time and what factors might explain such changes. This study examined DHD over time in a sample of terminally ill cancer patients admitted to a palliative care hospital. A random sample of 128 patients completed the Schedule of Attitudes toward Hastened Death (SAHD) at two time points approximately 2–4 weeks apart participated. Patients were categorized into one of four trajectories based on their SAHD scores at both time points: low (low DHD at T1 and T2), rising (low DHD at T1 and high DHD at T2), falling (high DHD at T1 and low DHD at T2) and high (high DHD at T1 and T2). Among patients who were low at T1, several variables distinguished between those who developed DHD and those who did not: physical symptom distress, depression symptom severity, hopelessness, spiritual well-being, baseline DHD, and a history of mental health treatment. However, these same medical and clinical variables did not distinguish between the falling and high trajectories. Overall, there appears to be a relatively high frequency of change in DHD, even in the last weeks of life. Interventions designed to target patients who are exhibiting subthreshold DHD and feelings of hopelessness may reduce the occurrence of DHD emerging in this population. •This study is the largest systematic examination of desire for hastened death in a terminally population.•Desire for hastened death fluctuated substantially during the final weeks of life.•Subthreshold DHD was associated with worsening DHD.•No variables differentiated patients whose DHD remitted from those that did not.