Parent and Self-Report Health-Related Quality of Life Measures in Young Patients With Tourette Syndrome

Tourette syndrome is a neurodevelopmental disorder characterized by tics and comorbid behavioral problems. This study compared child- and parent-reported quality of life and everyday functioning. We assessed 75 children with Tourette syndrome, of which 42 (56%) had comorbid conditions (obsessive-com...

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Bibliographic Details
Published in:Journal of child neurology 2013-10, Vol.28 (10), p.1305-1308
Main Authors: Cavanna, Andrea E., Luoni, Chiara, Selvini, Claudia, Blangiardo, Rosanna, Eddy, Clare M., Silvestri, Paola R., Cali’, Paola V., Gagliardi, Emanuela, Balottin, Umberto, Cardona, Francesco, Rizzo, Renata, Termine, Cristiano
Format: Article
Language:English
Subjects:
Adolescent
Adult
Attention Deficit Disorder with Hyperactivity - complications
Attention Deficit Disorder with Hyperactivity - psychology
Brief Communication
Child
Female
Health Status
Humans
Male
Obsessive-Compulsive Disorder - complications
Obsessive-Compulsive Disorder - psychology
Parents
Psychometrics
Quality of Life
Self Report
Severity of Illness Index
Tics - complications
Tics - psychology
Tourette Syndrome - complications
Tourette Syndrome - psychology
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Summary:Tourette syndrome is a neurodevelopmental disorder characterized by tics and comorbid behavioral problems. This study compared child- and parent-reported quality of life and everyday functioning. We assessed 75 children with Tourette syndrome, of which 42 (56%) had comorbid conditions (obsessive-compulsive disorder = 25; attention-deficit hyperactivity disorder = 6; both comorbidities = 4). All patients completed psychometric instruments, including the Gilles de la Tourette Syndrome–Quality of Life Scale for Children and Adolescents (child report) and the Child Tourette’s Syndrome Impairment Scale (parent report). Data were compared for patients with pure Tourette syndrome, Tourette syndrome + obsessive-compulsive disorder, Tourette syndrome + attention-deficit hyperactivity disorder, and Tourette syndrome + both comorbidities. There were no group differences in quality of life. However, there were differences for total, school, and home activities impairment scores. Children and parents may not share similar views about the impact of Tourette syndrome on functioning. The measurement of health-related quality of life in Tourette syndrome is more complex in children than adults.
ISSN:0883-0738
1708-8283
DOI:10.1177/0883073812457462