Building a data sharing model for global genomic research

Data sharing models designed to facilitate global business provide insights for improving transborder genomic data sharing. We argue that a flexible, externally endorsed, multilateral arrangement, combined with an objective third-party assurance mechanism, can effectively balance privacy with the ne...

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Bibliographic Details
Published in:Genome biology 2014-08, Vol.15 (8), p.430-430, Article 430
Main Authors: Kosseim, Patricia, Dove, Edward S, Baggaley, Carman, Meslin, Eric M, Cate, Fred H, Kaye, Jane, Harris, Jennifer R, Knoppers, Bartha M
Format: Article
Language:English
Subjects:
Europe
Genome, Human
Humans
Information Dissemination - legislation & jurisprudence
Models, Theoretical
Opinion
Translational Research, Biomedical - legislation & jurisprudence
Translational Research, Biomedical - organization & administration
United States
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Summary:Data sharing models designed to facilitate global business provide insights for improving transborder genomic data sharing. We argue that a flexible, externally endorsed, multilateral arrangement, combined with an objective third-party assurance mechanism, can effectively balance privacy with the need to share genomic data globally.
ISSN:1474-760X
1465-6906
1474-760X
1465-6914
DOI:10.1186/s13059-014-0430-2