The Effectiveness of self management program on quality of life in patients with sickle cell disease

Sickle cell patients suffer from many physical, psychological, and social problems that can affect their quality of life. To deal with this chronic condition and manage their disease and prevent complications associated with the disease, they must learn skills and behaviours. The aim of this study w...

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Bibliographic Details
Published in:Iranian journal of pediatric hematology and oncology 2015, Vol.5 (1), p.18-26
Main Authors: Ahmadi, M, Jahani, S, Poormansouri, S, Shariati, A, Tabesh, H
Format: Article
Language:English
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Summary:Sickle cell patients suffer from many physical, psychological, and social problems that can affect their quality of life. To deal with this chronic condition and manage their disease and prevent complications associated with the disease, they must learn skills and behaviours. The aim of this study was to determine the effectiveness of self-management programs on quality of life in these patients. Samples of this quasi-experimental study, which included 69 patients with sickle cell disease referring to the Thalassemia Clinic of Shafa Hospital, were entered into the study by census method. Patients received a self-management program using the 5A model for 12 weeks, while their quality of life before the intervention were assessed at the twelfth week and thirty-sixth week using SF-36 questionnaire. Data were analyzed by descriptive statistics, paired t-test, Wilcoxon test, Hotelling's T2, and repeated measures test. The eight dimensions and the total QoL score after intervention were significantly increased compared to those before the intervention (P
ISSN:2008-8892
2228-6993