Family Members’ Experience With Hospice in Nursing Homes

Research has documented numerous benefits and challenges associated with receipt of hospice care in nursing homes; however, study of this partnership from the perspective of residents’ family members has been limited. The purpose of this qualitative investigation was to explore family members’ exper...

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Bibliographic Details
Published in:American journal of hospice & palliative medicine 2016-05, Vol.33 (4), p.354-362
Main Authors: Gage, L. Ashley, Washington, Karla, Oliver, Debra Parker, Kruse, Robin, Lewis, Alexandra, Demiris, George
Format: Article
Language:English
Subjects:
Adult
Aged
Communication
Continuity of Patient Care
Cooperative Behavior
Family - psychology
Female
Homes for the Aged - organization & administration
Hospice Care - organization & administration
Humans
Male
Middle Aged
Nursing
Nursing Homes - organization & administration
Perception
Professional Role
Qualitative Research
Socioeconomic Factors
Young Adult
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Summary:Research has documented numerous benefits and challenges associated with receipt of hospice care in nursing homes; however, study of this partnership from the perspective of residents’ family members has been limited. The purpose of this qualitative investigation was to explore family members’ experience with hospice services received in the nursing home setting. Researchers conducted a secondary data analysis of 175 family member interviews using a thematic analytic approach. Findings highlighted the critical role of communication in supporting residents and their family members. Care coordination, support and oversight, and role confusion also impacted family members’ experience of hospice care in the nursing home. Efforts directed at enhancing communication and more clearly articulating the roles of members of the health care team are indicated.
ISSN:1049-9091
1938-2715
DOI:10.1177/1049909114560213