Patient portal preferences: Perspectives on imaging information

Patient portals have the potential to provide content that is specifically tailored to a patient's information needs based on diagnoses and other factors. In this work, we conducted a survey of 41 lung cancer patients at an outpatient lung cancer clinic at the medical center of the University o...

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Bibliographic Details
Published in:Journal of the Association for Information Science and Technology 2015-08, Vol.66 (8), p.1606-1615
Main Authors: McNamara, Mary, Arnold, Corey, Sarma, Karthik, Aberle, Denise, Garon, Edward, Bui, Alex A. T.
Format: Article
Language:English
Subjects:
Anxiety
Cancer
Diagnosis
Education
Gain
Imaging
information architecture
Information dissemination
Lungs
Patients
portals
user preferences
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Summary:Patient portals have the potential to provide content that is specifically tailored to a patient's information needs based on diagnoses and other factors. In this work, we conducted a survey of 41 lung cancer patients at an outpatient lung cancer clinic at the medical center of the University of California, Los Angeles, to gain insight into these perceived information needs and opinions on the design of a portal to fulfill them. We found that patients requested access to information related to diagnosis and imaging, with more than half of the patients reporting that they did not anticipate an increase in anxiety due to access to medical record information via a portal. We also found that patient educational background did not lead to a significant difference in desires for explanations of reports and definitions of terms.
ISSN:2330-1635
2330-1643
DOI:10.1002/asi.23269