Validation of a contemporary adherence measure for children with Type 1 diabetes: the Diabetes Management Questionnaire

Aims To evaluate the psychometric properties of the Diabetes Management Questionnaire, a brief, self‐report measure of adherence to contemporary diabetes management for young people with Type 1 diabetes and their caregivers. Methods A total of 273 parent‐child dyads completed parallel versions of th...

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Published in:Diabetic medicine 2015-09, Vol.32 (9), p.1232-1238
Main Authors: Mehta, S. N., Nansel, T. R., Volkening, L. K., Butler, D. A., Haynie, D. L., Laffel, L. M. B.
Format: Article
Language:English
Subjects:
Adolescent
Child
Children & youth
Diabetes
Diabetes Mellitus, Type 1 - drug therapy
Female
Glucose
Humans
Hypoglycemic Agents - administration & dosage
Insulin - administration & dosage
Male
Medication Adherence
Parents
Prospective Studies
Psychometrics
Questionnaires
Reproducibility of Results
Self Care
Self Report
Surveys and Questionnaires - standards
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Summary:Aims To evaluate the psychometric properties of the Diabetes Management Questionnaire, a brief, self‐report measure of adherence to contemporary diabetes management for young people with Type 1 diabetes and their caregivers. Methods A total of 273 parent‐child dyads completed parallel versions of the Diabetes Management Questionnaire. Eligible children (aged 8–18 years) had Type 1 diabetes for ≥1 year. A multidisciplinary team designed the Diabetes Management Questionnaire as a brief, self‐administered measure of adherence to Type 1 diabetes management over the preceding month; higher scores reflect greater adherence. Psychometrics were evaluated for the entire sample and according to age of the child. Results The children (49% female) had a mean ± sd (range) age 13.3 ± 2.9 (8–18) years and their mean ± sd HbA1c was 71 ± 15 mmol/mol (8.6 ± 1.4%). Internal consistency was good for parents (α = 0.83) and children (α = 0.79). Test‐retest reliability was excellent for parents (intraclass correlation coefficient =0.83) and good for children (intraclass correlation coefficient = 0.65). Parent and child scores had moderate agreement (intraclass correlation coefficient = 0.54). Diabetes Management Questionnaire scores were inversely associated with HbA1c (parents: r = –0.41, P 
ISSN:0742-3071
1464-5491
DOI:10.1111/dme.12682