Applicability of the SMART Model of Transition Readiness for Sickle-Cell Disease

This study aimed to examine the applicability of the Social-ecological Model of Adolescent and Young Adult Readiness to Transition (SMART) model for adolescents and young adults (AYA) with sickle-cell disease (SCD). 14 AYA with SCD (14-24 years old) and 10 clinical experts (6-20 years of experience)...

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Bibliographic Details
Published in:Journal of pediatric psychology 2016-06, Vol.41 (5), p.543-554
Main Authors: Mulchan, Siddika S, Valenzuela, Jessica M, Crosby, Lori E, Diaz Pow Sang, Claudia
Format: Article
Language:English
Subjects:
Adolescent
Anemia, Sickle Cell - psychology
Anemia, Sickle Cell - therapy
Female
Humans
Male
Models, Psychological
Qualitative Research
Regular
Surveys and Questionnaires
Transition to Adult Care
Young Adult
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Summary:This study aimed to examine the applicability of the Social-ecological Model of Adolescent and Young Adult Readiness to Transition (SMART) model for adolescents and young adults (AYA) with sickle-cell disease (SCD). 14 AYA with SCD (14-24 years old) and 10 clinical experts (6-20 years of experience) completed semi-structured interviews. AYA completed brief questionnaires. Interviews were coded for themes, which were reviewed to determine their fit within the SMART model. Overall, most themes were consistent with the model (e.g., sociodemographics/culture, neurocognition/IQ, etc.). Factors related to race/culture, pain management, health-care navigation skills, societal stigma, and lack of awareness about SCD were salient for AYA with SCD. Findings suggest the SMART model may be appropriate in SCD with the consideration of disease-related stigma. This study is a step toward developing a disease-specific model of transition readiness for SCD. Future directions include the development of a measure of transition readiness for this population.
ISSN:0146-8693
1465-735X
DOI:10.1093/jpepsy/jsv120