Health-related Quality of Life in Canadian Adolescents and Young Adults: Normative Data Using the SF-36

• Published in: Canadian journal of public health 2009-11, Vol.100 (6), p.449-452
• Main Authors: Hopman, Wilma M., Berger, Claudie, Joseph, Lawrence, Towheed, Tanveer, Prior, Jerilynn C., Anastassiades, Tassos, Poliquin, Suzette, Zhou, Wei, Adachi, Jonathan D., Hanley, David A., Papadimitropoulos, Emmanuel A., Tenenhouse, Alan, Group, CaMos Research
• Format: Article
• Language: English
• Subjects: Adolescent; Adolescents; Age; Age groups; Analysis; Biological and medical sciences; Bone density; Canada; Demographic aspects; Denial; Female; Health aspects; Health Status; Health surveys; Humans; Male; Medical sciences; Medicine; Medicine & Public Health; Men; Miscellaneous; Normativity; Older people; Osteoporosis; Public Health; Public health. Hygiene; Public health. Hygiene-occupational medicine; Quality of Life; QUANTITATIVE RESEARCH; Questionnaires; Reference Values; Studies; Surveys; Surveys and Questionnaires; Teenagers; Women; Young Adult; Young adults; Youth
• ISSN: 0008-4263; 1920-7476
• DOI: 10.1007/BF03404342

Objectives: Normative data for the SF-36 measure of health-related quality of life (HRQOL) exist for those over 25 years of age, based on data from the population-based Canadian Multicentre Osteoporosis Study (CaMos). CaMos recently recruited a sample of young Canadians aged between 16 and 24 years. The purpose of this study was to develop normative SF-36 data for this age group. Methods: After direct standardization to the Canadian population, means, standard deviations (SD), 95% confidence intervals and percentage at floor and ceiling were produced for the eight domain and two summary scores of the SF-36. Domains are scored from 0 (poor) to 100 (excellent). Summary scores are standardized to a mean of 50, with scores over 50 representing better than average and below 50 poorer than average function. Separate analyses were completed for men and women, and for those 16-19 years and 20-24 years. Results: The 1,001 community-based participants consisted of 474 men and 527 women from nine CaMos centres across Canada. Mean Physical Component Summary scores were 53.9 (SD=6.9) and 53.3 (SD=5.7) for young men and women, respectively. The equivalent Mental Component Summary scores were 49.3 (SD=9.7) and 48.8 (SD=8.9). In general, men scored somewhat higher than women, and younger (16-19 years) women scored higher than older (20-24 years) women, although the differences were small. Conclusion: HRQOL is good in this cohort of young Canadians. Both men and women scored somewhat better on physically than mentally oriented domains. In general, Canadian scores were similar to those of the US, while a comparable Swedish sample scored higher than both countries on most domains. Results underscore the importance of taking country, age and gender into consideration when using normative data. Objectifs : Des données normatives sur la qualité de vie liée à la santé (QVLS) dans le questionnaire sur l'état de santé SF-36 existent déjà pour les personnes de plus de 25 ans grâce aux données représentatives de l'Étude canadienne multicentrique sur l'ostéoporose (CaMos). La CaMos a recruté récemment un échantillon de jeunes Canadiens âgés de 16 à 24 ans. Le but de notre étude était d'élaborer des données normatives SF-36 pour ce groupe d'âge. Méthode : Après avoir effectué une standardisation directe à partir de la population canadienne, nous avons calculé les moyennes, les écarts-types (ET), les intervalles de confiance de 95 % et le pourcentage minimum et maximum pour les huit do