Development and Initial Assessment of a Patient Education Video about Pharmacogenetics

• Published in: Journal of personalized medicine 2017-05, Vol.7 (2), p.4
• Main Authors: Mills, Rachel, Ensinger, Megan, Callanan, Nancy, Haga, Susanne B
• Format: Article
• Language: English
• Subjects: Animation; Decision making; Feedback; Focus groups; Pharmacists; Pharmacogenetics; Precision medicine
• ISSN: 2075-4426; 2075-4426
• DOI: 10.3390/jpm7020004

As few patient-friendly resources about pharmacogenetics are currently available, we aimed to create and assess a patient educational video on pharmacogenetic testing. A primary literature and resources review was conducted to inform the content and the format of the video. The educational video was then created using a commercially available animation program and pilot tested in focus groups of the general public and by an online survey of pharmacists. Emerging themes from the focus groups and survey indicate a desire for appropriate risk contextualization and specific examples when pharmacogenetic testing may be beneficial. Focus group participants also expressed a preference for a video with live action, and more text to reinforce concepts. Pharmacists generally felt that the video was understandable for patients and relevant for decision-making regarding testing. Using this initial feedback and the identification of important concepts to include in pharmacogenetics educational tools, we plan to revise the video, perform additional evaluations, and publish the video for public use in the future.