Referral to cancer genetic counseling: do migrant status and patients’ educational background matter?

Participation rates in cancer genetic counseling differ among populations, as patients with a lower educational background and migrant patients seem to have poorer access to it. We conducted a study to determine the present-day educational level and migrant status of counselees referred to cancer ge...

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Bibliographic Details
Published in:Journal of community genetics 2017-10, Vol.8 (4), p.303-310
Main Authors: van der Giessen, J. A. M., van Riel, E., Velthuizen, M. E., van Dulmen, A. M., Ausems, M. G. E. M.
Format: Article
Language:English
Subjects:
Biomedical and Life Sciences
Biomedicine
Cancer
Demography
Epidemiology
Gene Function
Gene Therapy
Genetic counseling
Human Genetics
Inclusion of Diverse Populations In Genomics Research and Health Services: A Scientific and Health Equity Imperative
Original
Original Article
Population genetics
Prenatal development
Public Health
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Summary:Participation rates in cancer genetic counseling differ among populations, as patients with a lower educational background and migrant patients seem to have poorer access to it. We conducted a study to determine the present-day educational level and migrant status of counselees referred to cancer genetic counseling. We assessed personal characteristics and demographics of 731 newly referred counselees. Descriptive statistics were used to describe these characteristics. The results show that about 40% of the counselees had a high educational level and 89% were Dutch natives. Compared to the Dutch population, we found a significant difference in educational level ( p  = 
ISSN:1868-310X
1868-6001
DOI:10.1007/s12687-017-0326-4