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When unbearable suffering incites psychiatric patients to request euthanasia: qualitative study
The concept of 'unbearable suffering' is central to legislation governing whether euthanasia requests may be granted, but remains insufficiently understood, especially in relation to psychiatric patients. To provide insights into the suffering experiences of psychiatric patients who have m...
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Published in: | British journal of psychiatry 2017-10, Vol.211 (4), p.238-245 |
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description | The concept of 'unbearable suffering' is central to legislation governing whether euthanasia requests may be granted, but remains insufficiently understood, especially in relation to psychiatric patients.
To provide insights into the suffering experiences of psychiatric patients who have made a request for euthanasia.
Testimonials from 26 psychiatric patients who requested euthanasia were analysed using QualiCoder software.
Five domains of suffering were identified: medical, intrapersonal, interpersonal, societal and existential. Hopelessness was confirmed to be an important contributor. The lengthy process of applying for euthanasia was a cause of suffering and added to experienced hopelessness, whereas encountering physicians who took requests seriously could offer new perspectives on treatment.
The development of measurement instruments to assess the nature and extent of suffering as experienced by psychiatric patients could help both patients and physicians to better navigate the complicated and sensitive process of evaluating requests in a humane and competent way. Some correlates of suffering (such as low income) indicate the need for a broad medical, societal and political debate on how to reduce the burden of financial and socioeconomic difficulties and inequalities in order to reduce patients' desire for euthanasia. Euthanasia should never be seen (or used) as a means of resolving societal failures. |
doi_str_mv | 10.1192/bjp.bp.117.199331 |
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To provide insights into the suffering experiences of psychiatric patients who have made a request for euthanasia.
Testimonials from 26 psychiatric patients who requested euthanasia were analysed using QualiCoder software.
Five domains of suffering were identified: medical, intrapersonal, interpersonal, societal and existential. Hopelessness was confirmed to be an important contributor. The lengthy process of applying for euthanasia was a cause of suffering and added to experienced hopelessness, whereas encountering physicians who took requests seriously could offer new perspectives on treatment.
The development of measurement instruments to assess the nature and extent of suffering as experienced by psychiatric patients could help both patients and physicians to better navigate the complicated and sensitive process of evaluating requests in a humane and competent way. Some correlates of suffering (such as low income) indicate the need for a broad medical, societal and political debate on how to reduce the burden of financial and socioeconomic difficulties and inequalities in order to reduce patients' desire for euthanasia. Euthanasia should never be seen (or used) as a means of resolving societal failures.</description><identifier>ISSN: 0007-1250</identifier><identifier>EISSN: 1472-1465</identifier><identifier>DOI: 10.1192/bjp.bp.117.199331</identifier><identifier>PMID: 28970302</identifier><language>eng</language><publisher>England: Cambridge University Press</publisher><subject>Adult ; Aged ; Aged, 80 and over ; Assisted suicide ; Competence ; Euthanasia ; Euthanasia - legislation & jurisprudence ; Euthanasia - psychology ; Female ; Hopelessness ; Humans ; Inequality ; Legislation ; Male ; Measurement ; Mental disorders ; Mental Disorders - complications ; Mental Disorders - psychology ; Middle Aged ; Patients ; Physicians ; Psychiatry ; Qualitative Research ; Stress, Psychological - complications ; Stress, Psychological - psychology ; Suffering ; Suicides & suicide attempts ; Young Adult</subject><ispartof>British journal of psychiatry, 2017-10, Vol.211 (4), p.238-245</ispartof><rights>The Royal College of Psychiatrists 2017.</rights><rights>2017 This article is published under (https://creativecommons.org/licenses/by/3.0/) (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>The Royal College of Psychiatrists 2017. 2017</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c427t-b9bb206139d34c1bb4c2197e4b18ad3cc2175c88105ca5eb01dfc1e8ec54712f3</citedby><cites>FETCH-LOGICAL-c427t-b9bb206139d34c1bb4c2197e4b18ad3cc2175c88105ca5eb01dfc1e8ec54712f3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.proquest.com/docview/2315619593/fulltextPDF?pq-origsite=primo$$EPDF$$P50$$Gproquest$$H</linktopdf><linktohtml>$$Uhttps://www.proquest.com/docview/2315619593?pq-origsite=primo$$EHTML$$P50$$Gproquest$$H</linktohtml><link.rule.ids>230,314,777,781,882,12827,21375,21376,27905,27906,30980,33592,33593,34511,34512,43714,44096,73970,74388</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/28970302$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Verhofstadt, Monica</creatorcontrib><creatorcontrib>Thienpont, Lieve</creatorcontrib><creatorcontrib>Peters, Gjalt-Jorn Ygram</creatorcontrib><title>When unbearable suffering incites psychiatric patients to request euthanasia: qualitative study</title><title>British journal of psychiatry</title><addtitle>Br J Psychiatry</addtitle><description>The concept of 'unbearable suffering' is central to legislation governing whether euthanasia requests may be granted, but remains insufficiently understood, especially in relation to psychiatric patients.
To provide insights into the suffering experiences of psychiatric patients who have made a request for euthanasia.
Testimonials from 26 psychiatric patients who requested euthanasia were analysed using QualiCoder software.
Five domains of suffering were identified: medical, intrapersonal, interpersonal, societal and existential. Hopelessness was confirmed to be an important contributor. The lengthy process of applying for euthanasia was a cause of suffering and added to experienced hopelessness, whereas encountering physicians who took requests seriously could offer new perspectives on treatment.
The development of measurement instruments to assess the nature and extent of suffering as experienced by psychiatric patients could help both patients and physicians to better navigate the complicated and sensitive process of evaluating requests in a humane and competent way. Some correlates of suffering (such as low income) indicate the need for a broad medical, societal and political debate on how to reduce the burden of financial and socioeconomic difficulties and inequalities in order to reduce patients' desire for euthanasia. Euthanasia should never be seen (or used) as a means of resolving societal failures.</description><subject>Adult</subject><subject>Aged</subject><subject>Aged, 80 and over</subject><subject>Assisted suicide</subject><subject>Competence</subject><subject>Euthanasia</subject><subject>Euthanasia - legislation & jurisprudence</subject><subject>Euthanasia - psychology</subject><subject>Female</subject><subject>Hopelessness</subject><subject>Humans</subject><subject>Inequality</subject><subject>Legislation</subject><subject>Male</subject><subject>Measurement</subject><subject>Mental disorders</subject><subject>Mental Disorders - complications</subject><subject>Mental Disorders - psychology</subject><subject>Middle Aged</subject><subject>Patients</subject><subject>Physicians</subject><subject>Psychiatry</subject><subject>Qualitative Research</subject><subject>Stress, Psychological - complications</subject><subject>Stress, Psychological - psychology</subject><subject>Suffering</subject><subject>Suicides & suicide attempts</subject><subject>Young Adult</subject><issn>0007-1250</issn><issn>1472-1465</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2017</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><sourceid>ALSLI</sourceid><sourceid>HEHIP</sourceid><sourceid>M2R</sourceid><sourceid>M2S</sourceid><recordid>eNpdUU2LFDEQDaK44-oP8CIBL156TOWj0_EgyOKqsOBF8RiSdHonQ0-6Nx8L8-_N7qyLeqoq6tXjvXoIvQayBVD0vd2vW7u2Xm5BKcbgCdoAl7QD3ounaEMIkR1QQc7Qi5z3bWScyufojA5KEkboBulfOx9xjdabZOzsca7T5FOI1zhEF4rPeM1HtwumpODwakrwsWRcFpz8TfW5YF_LzkSTg_mAb6qZQ2mg28ZU6nh8iZ5NZs7-1UM9Rz8vP_-4-Npdff_y7eLTVeeaotJZZS0lPTA1Mu7AWu4oKOm5hcGMzLVJCjcMQIQzwlsC4-TAD94JLoFO7Bx9PPGu1R786JrIZGa9pnAw6agXE_S_mxh2-nq51aKnbJCqEbx7IEjLvS99CNn5eTbRLzVrULzn7cUDa9C3_0H3S02x2dOUgehBCXWHghPKpSXn5KdHMUD0XXy6xaft2nqpT_G1mzd_u3i8-JMX-w2_rJn-</recordid><startdate>201710</startdate><enddate>201710</enddate><creator>Verhofstadt, Monica</creator><creator>Thienpont, Lieve</creator><creator>Peters, Gjalt-Jorn Ygram</creator><general>Cambridge University Press</general><general>Royal College of Psychiatrists</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>0-V</scope><scope>3V.</scope><scope>7QJ</scope><scope>7TK</scope><scope>7XB</scope><scope>88G</scope><scope>88J</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8G5</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>ALSLI</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>GUQSH</scope><scope>HEHIP</scope><scope>M2M</scope><scope>M2O</scope><scope>M2R</scope><scope>M2S</scope><scope>MBDVC</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>PSYQQ</scope><scope>Q9U</scope><scope>7X8</scope><scope>5PM</scope></search><sort><creationdate>201710</creationdate><title>When unbearable suffering incites psychiatric patients to request euthanasia: qualitative study</title><author>Verhofstadt, Monica ; Thienpont, Lieve ; Peters, Gjalt-Jorn Ygram</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c427t-b9bb206139d34c1bb4c2197e4b18ad3cc2175c88105ca5eb01dfc1e8ec54712f3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2017</creationdate><topic>Adult</topic><topic>Aged</topic><topic>Aged, 80 and over</topic><topic>Assisted suicide</topic><topic>Competence</topic><topic>Euthanasia</topic><topic>Euthanasia - legislation & jurisprudence</topic><topic>Euthanasia - psychology</topic><topic>Female</topic><topic>Hopelessness</topic><topic>Humans</topic><topic>Inequality</topic><topic>Legislation</topic><topic>Male</topic><topic>Measurement</topic><topic>Mental disorders</topic><topic>Mental Disorders - complications</topic><topic>Mental Disorders - psychology</topic><topic>Middle Aged</topic><topic>Patients</topic><topic>Physicians</topic><topic>Psychiatry</topic><topic>Qualitative Research</topic><topic>Stress, Psychological - complications</topic><topic>Stress, Psychological - psychology</topic><topic>Suffering</topic><topic>Suicides & suicide attempts</topic><topic>Young Adult</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Verhofstadt, Monica</creatorcontrib><creatorcontrib>Thienpont, Lieve</creatorcontrib><creatorcontrib>Peters, Gjalt-Jorn Ygram</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Social Sciences Premium Collection</collection><collection>ProQuest Central (Corporate)</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>Neurosciences Abstracts</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Psychology Database (Alumni)</collection><collection>Social Science Database (Alumni Edition)</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>Research Library (Alumni Edition)</collection><collection>ProQuest Central (Alumni)</collection><collection>ProQuest Central</collection><collection>Social Science Premium Collection</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>Research Library Prep</collection><collection>Sociology Collection</collection><collection>Psychology Database</collection><collection>Research Library</collection><collection>Social Science Database</collection><collection>Sociology Database (ProQuest)</collection><collection>Research Library (Corporate)</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest One Psychology</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><collection>PubMed Central (Full Participant titles)</collection><jtitle>British journal of psychiatry</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Verhofstadt, Monica</au><au>Thienpont, Lieve</au><au>Peters, Gjalt-Jorn Ygram</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>When unbearable suffering incites psychiatric patients to request euthanasia: qualitative study</atitle><jtitle>British journal of psychiatry</jtitle><addtitle>Br J Psychiatry</addtitle><date>2017-10</date><risdate>2017</risdate><volume>211</volume><issue>4</issue><spage>238</spage><epage>245</epage><pages>238-245</pages><issn>0007-1250</issn><eissn>1472-1465</eissn><abstract>The concept of 'unbearable suffering' is central to legislation governing whether euthanasia requests may be granted, but remains insufficiently understood, especially in relation to psychiatric patients.
To provide insights into the suffering experiences of psychiatric patients who have made a request for euthanasia.
Testimonials from 26 psychiatric patients who requested euthanasia were analysed using QualiCoder software.
Five domains of suffering were identified: medical, intrapersonal, interpersonal, societal and existential. Hopelessness was confirmed to be an important contributor. The lengthy process of applying for euthanasia was a cause of suffering and added to experienced hopelessness, whereas encountering physicians who took requests seriously could offer new perspectives on treatment.
The development of measurement instruments to assess the nature and extent of suffering as experienced by psychiatric patients could help both patients and physicians to better navigate the complicated and sensitive process of evaluating requests in a humane and competent way. Some correlates of suffering (such as low income) indicate the need for a broad medical, societal and political debate on how to reduce the burden of financial and socioeconomic difficulties and inequalities in order to reduce patients' desire for euthanasia. Euthanasia should never be seen (or used) as a means of resolving societal failures.</abstract><cop>England</cop><pub>Cambridge University Press</pub><pmid>28970302</pmid><doi>10.1192/bjp.bp.117.199331</doi><tpages>8</tpages><oa>free_for_read</oa></addata></record> |
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subjects | Adult Aged Aged, 80 and over Assisted suicide Competence Euthanasia Euthanasia - legislation & jurisprudence Euthanasia - psychology Female Hopelessness Humans Inequality Legislation Male Measurement Mental disorders Mental Disorders - complications Mental Disorders - psychology Middle Aged Patients Physicians Psychiatry Qualitative Research Stress, Psychological - complications Stress, Psychological - psychology Suffering Suicides & suicide attempts Young Adult |
title | When unbearable suffering incites psychiatric patients to request euthanasia: qualitative study |
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