Utilisation of early intervention services in young children with hypoplastic left heart syndrome

Children with hypoplastic left heart syndrome are at a risk for neurodevelopmental delays. Current guidelines recommend systematic evaluation and management of neurodevelopmental outcomes with referral for early intervention services. The Single Ventricle Reconstruction Trial represents the largest...

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Bibliographic Details
Published in:Cardiology in the young 2018-01, Vol.28 (1), p.126-133
Main Authors: Mussatto, Kathleen A., Hollenbeck-Pringle, Danielle, Trachtenberg, Felicia, Sood, Erica, Sananes, Renee, Pike, Nancy A., Lambert, Linda M., Mahle, William T., Goldberg, David J., Goldberg, Caren S., Dunbar-Masterson, Carolyn, Otto, Michelle, Marino, Bradley S., Bartle, Bronwyn H., Williams, Ismee A., Jacobs, Jeffrey P., Zyblewski, Sinai C., Pemberton, Victoria L.
Format: Article
Language:English
Subjects:
Age
Cardiovascular disease
Child development
Children
Children & youth
Congenital diseases
Early intervention
Health risks
Health services utilization
Heart
Intervention
Motor ability
Original Articles
Parents
Pediatrics
Risk analysis
Risk assessment
Risk factors
Risk management
Ventricles (cerebral)
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Summary:Children with hypoplastic left heart syndrome are at a risk for neurodevelopmental delays. Current guidelines recommend systematic evaluation and management of neurodevelopmental outcomes with referral for early intervention services. The Single Ventricle Reconstruction Trial represents the largest cohort of children with hypoplastic left heart syndrome ever assembled. Data on life events and resource utilisation have been collected annually. We sought to determine the type and prevalence of early intervention services used from age 1 to 4 years and factors associated with utilisation of services. Data from 14-month neurodevelopmental assessment and annual medical history forms were used. We assessed the impact of social risk and geographic differences. Fisher exact tests and logistic regression were used to evaluate associations. Annual medical history forms were available for 302 of 314 children. Greater than half of the children (52-69%) were not receiving services at any age assessed, whereas 20-32% were receiving two or more therapies each year. Utilisation was significantly lower in year 4 (31%) compared with years 1-3 (with a range from 40 to 48%) (p
ISSN:1047-9511
1467-1107
DOI:10.1017/S104795111700169X