Solutions to Address Diabetes-Related Financial Burden and Cost-Related Nonadherence: Results From a Pilot Study

• Published in: Health education & behavior 2018-02, Vol.45 (1), p.101-111
• Main Authors: Patel, Minal R., Resnicow, Kenneth, Lang, Ian, Kraus, Kathleen, Heisler, Michele
• Format: Article
• Language: English
• Subjects: Acceptability; Adults; Behavior Change; Behavior Modification; Chronic conditions; Chronic illnesses; Clinical trials; Cost of Illness; Costs; Diabetes; Diabetes mellitus; Diabetes Mellitus - drug therapy; Disease Management; Dosage; Drugs; Endocrinology; Feasibility Studies; Female; Financial management; Financial Problems; Financing, Personal - economics; Health Behavior; Humans; Male; Medical personnel; Medication Adherence; Middle Aged; Money Management; Nurses; Original Article; Patient compliance; Patient Education as Topic - methods; Patient-centered care; Patients; Pharmacists; Pilot Projects; Pretests Posttests; Prevalence; Resource management; Resources; Self Management; Self Report; Selfmanagement; Statistical Analysis; Surveys and Questionnaires
• ISSN: 1090-1981; 1552-6127
• DOI: 10.1177/1090198117704683

Background. Cost-related nonadherence (CRN) to recommended self-management behaviors among adults with chronic conditions such as diabetes is prevalent. Few behavioral interventions to mitigate CRN have been tested and evaluated. Aims. We developed a financial burden resource tool and examined its acceptability and the preliminary effects on patient-centered outcomes among adults with diabetes or prediabetes seen in a clinical setting. Method. We report a pre–post one-group design pilot study. From an endocrinology clinic, we recruited 104 adults with diabetes who reported financial burdens with their diabetes management or engaged in CRN behaviors. We offered participants the financial burden resource tool we developed, which provided tailored, low-cost resource options for diabetes management and other social needs. Acceptability and self-reported outcomes were assessed 2 months after use of the tool. Results. Mean age of participants was 50.5 years (SD = 15.3). Participants found the tool highly acceptable across 15 indicators (e.g., 93% “learned a lot,” 98% “topics relevant” 95% “applicable to their lives,” 98% “liked the information”). Significant improvements between baseline and 2-month follow-up were observed for discussion of cost concerns with nurses (19% to 29%, p < .05) and pharmacists (13% to 25.5%, p < .01), not skipping doses of medicines due to cost (11% to 4%, p < .03), and financial management (33.83 to 39.62, p < .007). There were no significant changes in perception of financial burden. Conclusion. A financial burden resource tool is highly acceptable to patients, is easy to administer, and can prompt behavior change. This pilot study supports the need for well-powered trials with longer follow-up to further evaluate the effectiveness of such tools in improving CRN and key outcomes.