Timing and Intensity of Early Intervention Service Use and Outcomes Among a Safety-Net Population of Children

• Published in: JAMA network open 2019-01, Vol.2 (1), p.e187529-e187529
• Main Authors: McManus, Beth M, Richardson, Zachary, Schenkman, Margaret, Murphy, Natalie, Morrato, Elaine H
• Format: Article
• Language: English
• Subjects: Age Factors; Birth Weight; Child, Preschool; Data analysis; Developmental Disabilities - diagnosis; Developmental Disabilities - ethnology; Developmental Disabilities - therapy; Early intervention; Early Intervention, Educational; Female; Health Policy; Humans; Infant; Male; Online Only; Original Investigation; Poverty; Severity of Illness Index; Time-to-Treatment; Treatment Outcome; Urban Population
• ISSN: 2574-3805; 2574-3805
• DOI: 10.1001/jamanetworkopen.2018.7529

Federal per-child early intervention (EI) appropriations have declined, while accountability for improving children's development and function has increased. It is critical to understand high-value EI services and systems. To examine EI service timeliness and intensity, and the association between service intensity and outcomes. This secondary data analysis cohort study linked pediatric primary care electronic health records and EI program records from October 1, 2014, to September 30, 2016. Sample children from a large, urban safety-net health system and EI program who were younger than 35 months with a developmental disability or delay were examined. Data analysis was conducted from December 15, 2017, to May 15, 2018. The study included measures of condition type and severity, race and ethnicity, family income, insurance type, sex, birth weight, and language. The timeliness of EI (days from referral to EI care plan), service intensity (hours per month) overall and for core EI services (physical, occupational, speech therapy, and developmental intervention), and change in function (measured on a 13-point scale). Adjusted quantile median regression estimated timeliness and intensity. Adjusted linear regression estimated change in function. Of the 722 children who received an EI care plan (median [interquartile range] time to receive EI care plan, 56.0 [1.0-111.0] days) 457 (63.3%) were male, 447 (62.0%) were younger than 12 months, 207 (28.7%) were 12 to 24 months, and 68 (9.3%) were 25 to 35 months. A total of 663 children (91.8%) had a household income of less than $20 000 annually; 305 (43%) of the sample children received an EI care plan within the 45-day deadline. Median (interquartile range) for EI intensity was 2.7 (2.3-3.6) hours per month. Children living above the federal poverty threshold received greater occupational therapy intensity (b, 1.9; 95% CI, 0.9-3.0). Greater clinical severity was associated with more timely receipt of an EI care plan. Compared with infants, 2-year-old children received a care plan almost 2 months sooner (b, -52.0; 95% CI, -79.7 to -24.3). An additional hour per month of EI service was associated with a 3-point functional gain (b, 3.0; 95% CI, 1.5-5.9) among children with complete outcomes information (n = 448). In this study, greater EI service intensity was associated with better functional gains, yet most children in the study received delayed care and/or low service intensity. Clinical and EI record linkages could