Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomes

The purpose of this introductory article to the special issue on psychosocial outcome measures in Alzheimer's & Dementia: Translational Research & Clinical Interventions is to outline new frameworks to more effectively capture and measure the full range of how people living with Alzheim...

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Bibliographic Details
Published in:Alzheimer's & dementia : translational research & clinical interventions 2019, Vol.5 (1), p.388-397
Main Authors: Gaugler, Joseph E., Bain, Lisa J., Mitchell, Lauren, Finlay, Jessica, Fazio, Sam, Jutkowitz, Eric, Banerjee, Sube, Butrum, Kim, Gaugler, Joseph, Gitlin, Laura, Hodgson, Nancy, Kallmyer, Beth, Le Meyer, Oanh, Logsdon, Rebecca, Maslow, Katie, Zimmerman, Sheryl
Format: Article
Language:English
Subjects:
Aging
Alzheimer's disease
Assessment
Behavior
Care
Caregivers
Cognitive ability
Dementia
Disability
Gerontology
Measurement
Older people
Patient-centered care
Person-centered care
Positive
Psychosocial
Quality of life
Resilience
Social health
Successful aging
Well-Being
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Summary:The purpose of this introductory article to the special issue on psychosocial outcome measures in Alzheimer's & Dementia: Translational Research & Clinical Interventions is to outline new frameworks to more effectively capture and measure the full range of how people living with Alzheimer's dementia and their family caregivers experience the disease process. Specifically, we consider the strengths and weaknesses of alternative perspectives, including person-centered, strength-based, and resilience-focused approaches that may complement and extend the dominant deficit paradigm to reflect the entirety of the dementia experience. Our aim is to encourage innovative methods to measure psychosocial aspects of Alzheimer's dementia and caregiving that have not yet received sufficient attention, including resources (e.g., services and supports) and positive caregiver and care recipient outcomes (e.g., positive mood and adaptation).
ISSN:2352-8737
2352-8737
DOI:10.1016/j.trci.2019.02.008