A Qualitative Study to Identify Perceptual Barriers to Antiretroviral Therapy (ART) Uptake and Adherence in HIV Positive People from UK Black African and Caribbean Communities

To inform the development of interventions to increase uptake and adherence to antiretroviral therapy (ART), we explored perceptions of ART in semi-structured interviews with 52 men and women from UK black African and black Caribbean communities. Verbatim transcripts were analyzed using framework an...

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Bibliographic Details
Published in:AIDS and behavior 2019-09, Vol.23 (9), p.2514-2521
Main Authors: Glendinning, Elizabeth, Spiers, Johanna, Smith, Jonathan A., Anderson, Jane, Campbell, Lucy J., Cooper, Vanessa, Horne, Rob
Format: Article
Language:English
Subjects:
Adult
Africa South of the Sahara - ethnology
Antiretroviral agents
Antiretroviral drugs
Antiretroviral therapy
Art therapy
Black People - ethnology
Black People - psychology
Caribbean Region - ethnology
Communities
Cross-Sectional Studies
Disclosure
Drug therapy
Fear
Female
Health Psychology
HIV
HIV Infections - drug therapy
HIV Infections - psychology
Human immunodeficiency virus
Humans
Infectious Diseases
Interviews as Topic
Long-term effects
Male
Medication Adherence - ethnology
Medication Adherence - psychology
Medicine
Medicine & Public Health
Middle Aged
Original Paper
Perception
Prescription drugs
Public Health
Qualitative Research
Religion
Religious beliefs
Side effects
Social Stigma
Therapy
United Kingdom - epidemiology
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Summary:To inform the development of interventions to increase uptake and adherence to antiretroviral therapy (ART), we explored perceptions of ART in semi-structured interviews with 52 men and women from UK black African and black Caribbean communities. Verbatim transcripts were analyzed using framework analysis. Perceptions of ART could be grouped into two categories: doubts about the personal necessity for ART and concerns about potential adverse effects. Doubts about necessity stemmed from feeling well, doubts about the efficacy of ART, religious beliefs and the belief that treatment was futile because it could not cure HIV. Concerns about adverse effects included the fear that attending HIV services and taking treatment would lead to disclosure of HIV, feeling overwhelmed at the prospect of starting treatment soon after diagnosis, fears about side effects and potential long-term effects, and physical repulsion. The findings will facilitate the development of interventions to increase uptake and adherence to ART.
ISSN:1090-7165
1573-3254
1573-3254
DOI:10.1007/s10461-019-02670-x