PaTH to Partnership in Stakeholder-Engaged Research: A Framework for Patient Stakeholder Engagement in the PaTH to Health Diabetes Study

• Engaging a diverse stakeholder group, including patients, clinicians, policy makers, and leadership from national professional organizations as partners in research supports the pursuit of patient-centered outcomes. • Utilizing the Patient-Centered Outcomes Research (PCOR) Engagement Principles an...

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Bibliographic Details
Published in:Healthcare : the journal of delivery science and innovation 2019-05, Vol.8 (1), p.100361-100361
Main Authors: Poger, Jennifer M., Yeh, Hsin-Chieh, Bryce, Cindy L., Carroll, Jennifer K., Kong, Lan, Francis, Erica B., Kraschnewski, Jennifer L.
Format: Article
Language:English
Online Access:Get full text
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Summary:• Engaging a diverse stakeholder group, including patients, clinicians, policy makers, and leadership from national professional organizations as partners in research supports the pursuit of patient-centered outcomes. • Utilizing the Patient-Centered Outcomes Research (PCOR) Engagement Principles and applying adult learning theories to training opportunities can enhance stakeholder-investigator collaborations. • Regularly scheduled study meetings with stakeholders can help streamline communication, offer a platform for stakeholder voices to be shared, and increase study productivity. • Ongoing engagement evaluations provide an important opportunity to assess engagement activities and improve processes moving forward. • Benefits of a robust patient partner and stakeholder body extend beyond the study’s objectives and translate into the creation of larger networks where resources are shared and patient-centeredness is enhanced.
ISSN:2213-0764
2213-0772
DOI:10.1016/j.hjdsi.2019.05.001