Conducting research with minimally verbal participants with autism spectrum disorder

A growing number of research groups are now including older minimally verbal individuals with autism spectrum disorder in their studies to encompass the full range of heterogeneity in the population. There are numerous barriers that prevent researchers from collecting high-quality data from these in...

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Bibliographic Details
Published in:Autism : the international journal of research and practice 2017-10, Vol.21 (7), p.852-861
Main Authors: Tager-Flusberg, Helen, Plesa Skwerer, Daniela, Joseph, Robert M, Brukilacchio, Brianna, Decker, Jessica, Eggleston, Brady, Meyer, Steven, Yoder, Anne
Format: Article
Language:English
Subjects:
Adjustment (to Environment)
Adolescent
Adolescents
Applied behavior analysis
Applied Behavior Analysis - methods
Augmentative and Alternative Communication
Autism
Autism Spectrum Disorder
Autistic adolescents
Autistic children
Behavior
Behavior Problems
Behavior Rating Scales
Check Lists
Child
Child, Preschool
Children
Communication Disorders
Communication Problems
Communication Strategies
Diagnostic Tests
Eye Movement Measurements
Eye Movements
Female
Humans
Male
Observation
Pervasive Developmental Disorders
Research Methodology
Symptoms (Individual Disorders)
Tracking
Verbal Communication
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Summary:A growing number of research groups are now including older minimally verbal individuals with autism spectrum disorder in their studies to encompass the full range of heterogeneity in the population. There are numerous barriers that prevent researchers from collecting high-quality data from these individuals, in part because of the challenging behaviors with which they present alongside their very limited means for communication. In this article, we summarize the practices that we have developed, based on applied behavioral analysis techniques, and have used in our ongoing research on behavioral, eye-tracking, and electrophysiological studies of minimally verbal children and adolescents with autism spectrum disorder. Our goal is to provide the field with useful guidelines that will promote the inclusion of the entire spectrum of individuals with autism spectrum disorder in future research investigations.
ISSN:1362-3613
1461-7005
DOI:10.1177/1362361316654605