Adolescent perceptions of pharmacogenetic testing

Despite the expansion of pharmacogenetics (PGx), the views of pediatric patients remain unknown. This study explores adolescents’ understanding and perceptions of PGx testing. Adolescents who had PGx testing were interviewed and their electronic health records were reviewed. Adolescents accurately d...

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Bibliographic Details
Published in:Pharmacogenomics 2021-04, Vol.22 (6), p.335-343
Main Authors: Stancil, Stephani L, Berrios, Courtney, Abdel-Rahman, Susan
Format: Article
Language:English
Subjects:
Adolescent
adolescents
Attitude
Child
Electronic Health Records
Employment
Female
Humans
implementation
Insurance, Health
Male
pediatrics
pharmacogenetics
Pharmacogenomic Testing
pharmacogenomics
Young Adult
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Summary:Despite the expansion of pharmacogenetics (PGx), the views of pediatric patients remain unknown. This study explores adolescents’ understanding and perceptions of PGx testing. Adolescents who had PGx testing were interviewed and their electronic health records were reviewed. Adolescents accurately described reason for testing and most felt the results impacted their current and future care. None perceived risks to securing future employment or insurance. All felt PGx would benefit their peers. Adolescents understand the reasons for PGx and perceive testing to be useful, low risk and applicable to peers. Findings from this study advocate for the inclusion of adolescents in shared decision-making regarding testing and for active engagement in the discussion of results.
ISSN:1462-2416
1744-8042
DOI:10.2217/pgs-2020-0177