Managing women‐specific bleeding in inherited bleeding disorders: A multidisciplinary approach

Introduction Multidisciplinary management of women‐specific bleeding is important to preserve quality of life, healthy reproduction and social participation of women and girls with bleeding disorders (WBD). Aim To support appropriate multidisciplinary care for WBD in haemophilia treatment centres. M...

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Bibliographic Details
Published in:Haemophilia : the official journal of the World Federation of Hemophilia 2021-05, Vol.27 (3), p.463-469
Main Authors: Mauser‐Bunschoten, Eveline P., Kadir, Rezan A., Laan, Ellen T. M., Elfvinge, Petra, Haverman, Lotte, Teela, Lorynn, Degenaar, Manon E. L., Fransen van de Putte, Dietje E., D'Oiron, Roseline, van Galen, Karin P. M.
Format: Article
Language:English
Subjects:
Bleeding
bleeding disorder
Child
Female
Genetic screening
Gynecology
haemophilia
heavy menstrual bleeding
Hematology
Hemophilia
Hemophilia A - genetics
Hemophilia A - therapy
Hemorrhage
Human health and pathology
Humans
Life Sciences
Menarche
Menorrhagia - therapy
Menstruation
Original
Patients
post‐partum haemorrhage and reproduction
Pregnancy
Quality of Life
von willebrand disease
Women
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Summary:Introduction Multidisciplinary management of women‐specific bleeding is important to preserve quality of life, healthy reproduction and social participation of women and girls with bleeding disorders (WBD). Aim To support appropriate multidisciplinary care for WBD in haemophilia treatment centres. Methods Two case examples are presented and management issues discussed from different health care perspectives, including the nurse, patient, psychologist, gynaecologist, geneticist, psychosexual therapist and haematologist. Results Woman with bleeding disorders may experience heavy menstruation from menarche onwards. This has a physical and psychosocial impact requiring a multidisciplinary approach. If a woman with an inherited bleeding disorder desires to become pregnant, preconception counselling is essential, to discuss genetic diagnosis, state of the art treatment options for the bleeding disorder in question and possible choices to prevent having an affected child, as well as maternal bleeding risks during conception, delivery and the post‐partum period. Conclusion Adequate management and good education of WBD requires a patient‐centred multidisciplinary approach with experienced specialists in a haemophilia treatment centre.
ISSN:1351-8216
1365-2516
DOI:10.1111/hae.14221