Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study

• Published in: International journal of environmental research and public health 2021-12, Vol.19 (1), p.185
• Main Authors: Salha, Leila Abou, Silva, Julio Cesar Souza, Martins, Cleusa Alves, Araújo, Cristiane Soares da Costa, da Silva, Edinamar Aparecida Santos, Alves, Angela Gilda, de Paula, Cácia Régia, de Lima, Flavio Henrique Alves, de Moura, Veidma Siqueira, de Menezes, José Elmo, Brasil, Virginia Visconde, Barbosa, Maria Alves
• Format: Article
• Language: English
• Subjects: Activities of daily living; Adult; Cancer; Caregivers; Content analysis; Coronaviruses; COVID-19; Data analysis; Data collection; Disease control; Exercise; Family income; Female; Health care; Humans; Hygiene; Medical research; Middle Aged; Neoplasms - epidemiology; Ontology; Pandemics; Patients; Personal hygiene; Physical fitness; Public health; Public policy; Qualitative analysis; Qualitative research; Quality assessment; SARS-CoV-2; Skin cancer; Social interactions; Sociodemographics; Software
• ISSN: 1660-4601; 1661-7827; 1660-4601
• DOI: 10.3390/ijerph19010185

Caregivers of individuals with cancer in the COVID-19 pandemic are faced with the demands of cancer and the health needs produced by it, along with their own health and self-care needs, and the uncertainties of expectations and risks. A qualitative analytical phenomenological study with caregivers of individuals with cancer registered at the state referral hospital supplying medications, who answered the sociodemographic assessment questionnaires and semi-structured questions about their feelings and perceptions in the COVID-19 pandemic. Bardin's content analysis was used, with methodological quality assessed using SRQR Standards for Reporting Qualitative Research and the MAXQDA software. Most of the caregivers are women, married, Catholic, of low income and education, aged between 30 and 60 years, optimistic, comply with health guidelines regarding social distancing, use of masks, and routine hand hygiene, do not practice regular physical activities, mention concern for their own physical and financial survival, and that of their family. The main need identified in the affective sphere was to reframe contact with family members, seeking to strengthen the bonds of affection. The feeling of emotional vulnerability shows the importance of building effective public policies for social support consistent with the improvement of health care for this population.