Integration of Health Information Technology and Promotion of Personhood in Family-Centered Dementia Care: Intervention Trial

Alzheimer's disease and related dementias (ADRD) often result in communication deficits that can lead to negative health outcomes as well as complications for caregiving and clinical care. Although augmentative and alternative communication (AAC) devices have demonstrated efficacy in assisting...

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Bibliographic Details
Published in:Research in gerontological nursing 2021-09, Vol.14 (5), p.225-234
Main Authors: Brown, Ellen L, Ruggiano, Nicole, Roberts, Lisa, Clarke, Peter J, Davis, Debra Lee, Agronin, Marc, Geldmacher, David S, Hough, Monica Strauss, Muñoz, Mariateresa Teri H, Framil, C Victoria, Yang, Xin
Format: Article
Language:English
Subjects:
Alzheimer's disease
Augmentative and alternative communication
Care and treatment
Caregivers
Clinical trials
Communication
Decision making
Dementia
Dementia - therapy
Diagnosis
Health care reform
Health promotion
Humans
Hypotheses
Information technology
Interactive computer systems
Intervention
Management
Medical care
Medical Informatics
Methods
Older people
Patient outcomes
Personhood
Quality management
Quality of Life
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Summary:Alzheimer's disease and related dementias (ADRD) often result in communication deficits that can lead to negative health outcomes as well as complications for caregiving and clinical care. Although augmentative and alternative communication (AAC) devices have demonstrated efficacy in assisting persons living with dementia (PLWD) in communicating, few devices offer customization for the person's care preferences (e.g., clothing, food, activities) or are designed for integration into clinical care and caregiving. To address this issue, our research team is developing a novel electronic AAC prototype with a touchscreen to promote communication and personhood for PLWD. The current article describes the development of this technology and uses the Standard Protocol Items: Recommendations for Interventional Trials (SPIRIT) 2013 Statement to describe the clinical trial that is planned to test its efficacy. PLWD and their care partners. Use of AAC Plus to promote communication and personhood for PLWD. AAC Plus will provide PLWD and care partners a way to communicate PLWD's daily preferences and provide clinical data for health care providers. Determine whether enhanced communication of daily preferences of PLWD will improve quality of life of PLWD and their care partners. ClinicalTrials.gov Identifier: NCT04571502 (Date of registration October 1, 2020). [ (5), 225-234.].
ISSN:1940-4921
1938-2464
DOI:10.3928/19404921-20210825-02