Rare Diseases in the Educational Field: Knowledge and Perceptions of Spanish Teachers

Education plays a fundamental role in everyone's wellbeing. That means it is essential to provide quality inclusive activities to ensure equity and equality of opportunity in order to shape a cohesive, democratic, healthy society. In this study we focus on how inclusive educational practice add...

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Bibliographic Details
Published in:International journal of environmental research and public health 2022-05, Vol.19 (10), p.6057
Main Authors: García-Perales, Ramón, Palomares-Ruiz, Ascensión, Ordóñez-García, Lydia, García-Toledano, Eduardo
Format: Article
Language:English
Subjects:
Community
COVID-19
Discrimination
Education
Equality
Learning
Legislation
Participation
Patients
Quality of education
Quality of life
Questionnaires
Rare diseases
Schools
Society
Students
Teachers
Teaching
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Summary:Education plays a fundamental role in everyone's wellbeing. That means it is essential to provide quality inclusive activities to ensure equity and equality of opportunity in order to shape a cohesive, democratic, healthy society. In this study we focus on how inclusive educational practice addresses students with rare diseases, looking at teachers' knowledge and opinions in this regard. A questionnaire was administered to 574 teachers who taught in various stages of non-university education to determine their knowledge and opinions about different dimensions: conceptualization, legislation, intervention, and diagnosis. The results suggested various ideas for improvement in pursuit of positive, real inclusion, such as the need to improve teachers' knowledge and understanding of these students' characteristics and potential, with widespread specific training being urgently needed. in summary, students' rights to education without discrimination is a basic premise of an educational system, leading to the need for a complete educational response that allows each student to develop as a person.
ISSN:1660-4601
1661-7827
1660-4601
DOI:10.3390/ijerph19106057