Adapting a Cancer Screening Education Program for Native American Women with Disabilities

• Published in: International journal of environmental research and public health 2022-07, Vol.19 (15), p.9280
• Main Authors: Armin, Julie S, Williamson, Heather J, Begay, Andria, Etcitty, Jennifer, Attakai, Agnes, Russell, Kim, Baldwin, Julie A
• Format: Article
• Language: English
• Subjects: Age; American Indian or Alaska Native; Breast cancer; Cancer screening; Caregivers; Cervical cancer; Cervix; Child; Children; Community; Data collection; Developmental disabilities; Developmental Disabilities - epidemiology; Disability; Disabled Persons; Early Detection of Cancer - methods; Education; Female; Females; Health care; Humans; Informed consent; Intellectual Disability - epidemiology; Interviews; Literacy; Medical screening; Native North Americans; Native women; People with disabilities; Qualitative research; Rural areas; Universal design; Urban areas; Uterine Cervical Neoplasms - diagnosis; Uterine Cervical Neoplasms - prevention & control; Womens health
• ISSN: 1660-4601; 1661-7827; 1660-4601
• DOI: 10.3390/ijerph19159280

Like other minoritized groups, people with disabilities experience lack of access to health care. People with intellectual and developmental disabilities (IDD), which are lifelong disabilities diagnosed in childhood requiring varying levels of support for completing daily activities, are less likely to receive preventive health care such as cancer screening. Furthermore, Native American women are less likely than White women to receive cancer screenings. In this qualitative research with Native American women with IDD, their caregivers, healthcare and service providers, and community leaders, we asked, "What are the influences on breast and cervical cancer screening for Native American women with IDD?" with the goal of adapting an existing cancer screening education program. Semi-structured in-depth interviews (N = 48) were audio recorded and transcribed verbatim for analysis. Two coders used a constant comparative method to code and revise the a priori codebook with subthemes and new codes. Results highlighted individual, interpersonal, and community/institutional influences on screening, emphasizing the individual effects of social inequity on this population, the importance of ableist bias in recommending cancer screenings, and opportunities to integrate traditional ways of knowing with allopathic medicine. Results of this work were used to adapt a cancer screening education program for Native American women with IDD.