Reinforcing Health Data Sharing through Data Democratization

In this paper, we propose a health data sharing infrastructure which aims to empower a democratic health data sharing ecosystem. Our project, named Health Democratization (HD), aims at enabling seamless mobility of health data across trust boundaries through addressing structural and functional chal...

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Bibliographic Details
Published in:Journal of personalized medicine 2022-08, Vol.12 (9), p.1380
Main Authors: Wang, Yuhang, Blobel, Bernd, Yang, Bian
Format: Article
Language:English
Subjects:
Access control
Architecture
Data integrity
Decision making
Democracy
Democratization
Design
Ethics
General Data Protection Regulation
Information sharing
Infrastructure
Interoperability
Medical records
Patients
Precision medicine
Privacy
Structure-function relationships
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Summary:In this paper, we propose a health data sharing infrastructure which aims to empower a democratic health data sharing ecosystem. Our project, named Health Democratization (HD), aims at enabling seamless mobility of health data across trust boundaries through addressing structural and functional challenges of its underlying infrastructure with the core concept of data democratization. A programmatic design of an HD platform was elaborated, followed by an introduction of one of our critical designs—a “reverse onus” mechanism that aims to incentivize creditable data accessing behaviors. This scheme shows a promising prospect of enabling a democratic health data-sharing platform.
ISSN:2075-4426
2075-4426
DOI:10.3390/jpm12091380