Using Narratives to Correct Forecasting Errors in Pediatric Tracheostomy Decision Making

Purpose Parents who face goals-of-care tracheostomy decisions may lack an understanding of challenges affecting their child’s and family’s long-term quality of life (QOL) to accurately forecast possible outcomes for decision making. We sought to examine whether and how parents’ narratives of the chi...

Full description

Saved in:
Bibliographic Details
Published in:Medical decision making 2021-04, Vol.41 (3), p.305-316
Main Authors: Yan, Haoyang, Deldin, Patricia J., Kukora, Stephanie K., Arslanian-Engoren, Cynthia, Pituch, Kenneth, Zikmund-Fisher, Brian J.
Format: Article
Language:English
Subjects:
Adult
Child
Decision Making
Humans
Infant
Narration
Parents
Quality of Life
Tracheostomy
Citations: Items that this one cites
Items that cite this one
Online Access:Get full text
Tags: Add Tag
No Tags, Be the first to tag this record!
Description
Summary:Purpose Parents who face goals-of-care tracheostomy decisions may lack an understanding of challenges affecting their child’s and family’s long-term quality of life (QOL) to accurately forecast possible outcomes for decision making. We sought to examine whether and how parents’ narratives of the child’s and family’s long-term QOL influence parental tracheostomy decisions and forecasting. Method We recruited US adult Amazon Mechanical Turk participants (N = 1966) who self-reported having a child (
ISSN:0272-989X
1552-681X
DOI:10.1177/0272989X21990693