Mental health of autistic adults during the COVID-19 pandemic: The impact of perceived stress, intolerance of uncertainty, and coping style

• Published in: Autism : the international journal of research and practice 2023-04, Vol.27 (3), p.832-847
• Main Authors: Evers, Kris, Gijbels, Eef, Maljaars, Jarymke, Rumball, Freya, Spain, Debbie, Happé, Francesca, Noens, Ilse
• Format: Article
• Language: English
• Subjects: Adaptation, Psychological; Adjustment (to Environment); Adult; Adults; Ambiguity (Context); Anxiety; Attitudes; Autism; Autism Spectrum Disorder; Autism Spectrum Disorders; Autistic adults; Behavior problems; Control Groups; Coping; Coping strategies; Coping style; Coronaviruses; COVID-19; Depression (Psychology); Foreign Countries; Health problems; Humans; Internalization; Intervention; Mental depression; Mental disorders; Mental Health; Mental health services; Moderation; Original; Pandemics; Personal characteristics; Psychoeducational treatment; Social Cognition; Stress; Stress Variables; Stress, Psychological - epidemiology; Symptoms; Symptoms (Individual Disorders); Teaching; Uncertainty
• ISSN: 1362-3613; 1461-7005; 1461-7005
• DOI: 10.1177/13623613221119749

Autistic individuals are at particular risk of experiencing mental health problems during the COVID-19 pandemic, yet little is known about personal characteristics that may underlie this vulnerability. This longitudinal questionnaire study with 149 autistic and 147 non-autistic adults investigated the association between perceived stress and anxiety and depressive symptoms, measured 4 months later. In addition, the moderating impact of intolerance of uncertainty and coping styles on this association was examined. Confirming previous studies, autistic adults reported poorer mental health than non-autistic individuals. Results demonstrated similar moderation models across individuals with versus without autism. Perceived stress at timepoint 1 was associated with anxiety and depression at timepoint 2. Across both participant groups, individuals with maladaptive coping strategies and higher levels of intolerance of uncertainty at timepoint 1 showed more internalizing symptoms at timepoint 2. The findings demonstrate the burden of the pandemic on the mental health of autistic adults, especially on those with high levels of perceived stress, maladaptive coping strategies, or intolerance of uncertainty. Interventions to support autistic adults during and after the pandemic might involve providing psychoeducation about the impact of stress, coping, and intolerance of uncertainty on internalizing symptoms, and teaching more adaptive ways to cope with difficult circumstances. Lay abstract More and more research shows us that autistic individuals are at risk of experiencing mental health problems in response to the COVID-19 pandemic. However, little is known about why this is the case. At two timepoints during the pandemic, we asked 149 autistic and 147 non-autistic adults about feelings of anxiety, depression, and stress, and about characteristics that may explain why some (autistic) people have a larger chance of developing anxiety and depression during this pandemic. In our study, autistic adults experienced more anxiety and depression than non-autistic adults. Across autistic and non-autistic individuals, the people who experienced more stress at timepoint 1 experienced more anxiety and depression 4 months later. This was especially the case for those individuals who use maladaptive coping styles, such as denial or venting, and for those who have difficulties dealing with uncertain situations. Our findings show the burden of the COVID-19 pandemic on the mental he