6.G. Workshop: The European Health Data Space 2: is Europe ready to maximise the re-use of health data?

The EU's Heads of State called in October 2020 to set up a European Health Data Space (EHDS): "The European Council welcomes the creation of common European data spaces in strategic sectors, and in particular invites the Commission to give priority to the health data space". As a resp...

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Bibliographic Details
Published in:European journal of public health 2022-10, Vol.32 (Supplement_3)
Format: Article
Language:English
Subjects:
Audiences
Barriers
Best practice
Borders
Data
Data management
Disease prevention
Epidemiology
Expectations
Heads of state
Health research
Infrastructure
Management
Management systems
Medical research
Parallel Programme
Public health
R&D
Research & development
Space launch services
Tribunals & commissions
Workshops
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Summary:The EU's Heads of State called in October 2020 to set up a European Health Data Space (EHDS): "The European Council welcomes the creation of common European data spaces in strategic sectors, and in particular invites the Commission to give priority to the health data space". As a response, multiple initiatives were set-up to engage the views and expectations from EU member states in the development of the upcoming legislative proposal on the EHDS for primary (EHDS1) and secondary use of health data (EHDS2). One of these was the launch of the Joint Action (JA) Towards the European Health Data Space (TEHDAS) in February 2021. The aim of TEHDAS is to support the European Commission (EC) and Member States (MS), identifying the challenges and providing concepts and options for the EHDS2. It is built on the needs and expectations of national and international stakeholders, citizens' engagement and existing infrastructure. The major expected outcome of this JA is a sustainable roadmap towards the EHDS2 implementation promoting the cross-border sharing of health data for secondary use. The EHDS2 will benefit population health by facilitating the timely exchange of and access to health data, improving not only the care of patients but also facilitating research, epidemiology, disease prevention and data-based policy decisions. This workshop aims to provide an overview of the preparedness of MS to join the EHDS for secondary use of health data, covering current state-of-play of health data management systems in the EU, barriers on the secondary use of health data, the ongoing work on the development and deployment of the EHDS2 infrastructure and finally, how population health research can benefit from the EHDS2. The workshop will begin with a short introduction on the TEHDAS JA, followed by a presentation on the outcomes of the TEHDAS country visits. In these country visits, the state-of-play of the health data management system and the preparedness to join the EHDS2 were mapped in 12 different EU MS. The next presentation will continue with the results from a study that collected more evidence on the barriers to cross-border sharing of health data for secondary use and options on how to overcome these. It will focus on the legal preparedness and barriers and will discuss how the options proposed by experts in the field align with the legislative proposal for the EHDS2. The audience will be able to give their opinion on the different options through an interactive v
ISSN:1101-1262
1464-360X
DOI:10.1093/eurpub/ckac129.365