Supporting families in their child's journey with neonatal encephalopathy and therapeutic hypothermia

Neonates and families face challenges in hypothermic therapy, including trauma to parents, extreme emotions, and unfamiliarity with the medical system. Communication is an essential element to supporting parents while their children are in the NICU, and beyond, building the foundation for the ongoin...

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Bibliographic Details
Published in:Seminars in fetal & neonatal medicine 2021-10, Vol.26 (5), p.101278-101278, Article 101278
Main Authors: Pilon, Betsy, Craig, Alexa K., Lemmon, Monica E., Goeller, Annie
Format: Article
Language:English
Subjects:
Brain Diseases
Child
Family-centered care
Humans
Hypothermia, Induced
Hypoxic ischemic encephalopathy
Infant
Infant, Newborn
Neonatal encephalopathy
Neonatal neurology
Neonatology
Parent
Parents - psychology
Pediatric neurology
Trauma-informed care
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Summary:Neonates and families face challenges in hypothermic therapy, including trauma to parents, extreme emotions, and unfamiliarity with the medical system. Communication is an essential element to supporting parents while their children are in the NICU, and beyond, building the foundation for the ongoing relationship the family has with the medical system. Significant consideration needs to be given to the critical element of integrating the family into the care of a baby being treated with therapeutic hypothermia. Clinicians can promote healing of accumulated traumas of parents through ensuring parent's emotional safety, facilitating a trusting relationship, and promoting parent empowerment. Connecting parents with resources, especially peer support, is an essential part of a hospital stay. In this chapter, we explore best practices to support families during and after hypothermic therapy.
ISSN:1744-165X
1878-0946
DOI:10.1016/j.siny.2021.101278