The evolving privacy and security concerns for genomic data analysis and sharing as observed from the iDASH competition

Concerns regarding inappropriate leakage of sensitive personal information as well as unauthorized data use are increasing with the growth of genomic data repositories. Therefore, privacy and security of genomic data have become increasingly important and need to be studied. With many proposed prote...

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Bibliographic Details
Published in:Journal of the American Medical Informatics Association : JAMIA 2022-11, Vol.29 (12), p.2182-2190
Main Authors: Kuo, Tsung-Ting, Jiang, Xiaoqian, Tang, Haixu, Wang, XiaoFeng, Harmanci, Arif, Kim, Miran, Post, Kai, Bu, Diyue, Bath, Tyler, Kim, Jihoon, Liu, Weijie, Chen, Hongbo, Ohno-Machado, Lucila
Format: Article
Language:English
Subjects:
Computer Security
Data Analysis
Genome
Genomics
Privacy
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Summary:Concerns regarding inappropriate leakage of sensitive personal information as well as unauthorized data use are increasing with the growth of genomic data repositories. Therefore, privacy and security of genomic data have become increasingly important and need to be studied. With many proposed protection techniques, their applicability in support of biomedical research should be well understood. For this purpose, we have organized a community effort in the past 8 years through the integrating data for analysis, anonymization and sharing consortium to address this practical challenge. In this article, we summarize our experience from these competitions, report lessons learned from the events in 2020/2021 as examples, and discuss potential future research directions in this emerging field.
ISSN:1067-5027
1527-974X
DOI:10.1093/jamia/ocac165