Barriers to Service Use Among Dementia Family Caregivers in Rural Appalachia: Implications for Reducing Caregiver Overload

• Published in: Prevention science 2023-07, Vol.24 (5), p.950-960
• Main Authors: Vipperman, Andrew, Savla, Jyoti, Roberto, Karen A., Burns, Derek
• Format: Article
• Language: English
• Subjects: Aged; Appalachian Region; Barriers; Caregivers; Child and School Psychology; Community-based programs; Complexity; Conservation; Dementia; Families & family life; Female; Health behavior; Health Psychology; Humans; Male; Medicine; Medicine & Public Health; Middle Aged; Older people; Personal finance; Prevention programs; Public Health; Services; Support services
• ISSN: 1389-4986; 1573-6695
• DOI: 10.1007/s11121-022-01479-w

Although the benefits of home- and community-based services (HCBS) to support the needs of older adults are well-established, researchers have persistently reported service underutilization by dementia caregivers to assist them with their caregiving responsibilities. Using the Health Behavior Model and Conservation of Resources Theory, the aim of the current study was to understand what barriers prevent caregivers from using HCBS and the toll it takes on them. Utilizing a sample of 122 rural family caregivers (74% female, 87% white, M age  = 64.86 years) of persons living with dementia (PLwD), simultaneous ordinary least square regressions were employed to understand the association between barriers to service use and the current use of support services and personal services, and concurrently on caregiver role overload. Financial barriers, caregiver’s reluctance to use services, and their capability of seeking services were associated with lower use of support services. After controlling for need and enabling factors, caregivers who used more support services, and those who reported system complexities to using support services experienced higher role overload. Financial barriers, system complexities, and caregivers’ reluctance also affected the use of personal care services. Despite the use of personal services, caregivers of PLwD with greater needs and fewer enabling factors experienced higher role overload. Study findings suggest that reducing system complexities of HCBS and improving prevention and intervention efforts to facilitate caregivers’ awareness of HCBS are needed to address lack of service use and reduce caregiver overload.