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NETWORK AND SOCIAL SUPPORT IN CHILDREN WITH CHRONIC DISEASES: UNDERSTANDING THE CHILD'S PERCEPTION
ABSTRACT Objective to identify the network and social support in the perception of children with chronic disease. Method qualitative research conducted with eight children with chronic disease, between November 2012 and June 2013 in a public hospital in Paraiba, Brazil. An adaptation of the drawing-...
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Published in: | Texto & contexto enfermagem 2017, Vol.26 (1) |
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Main Authors: | , , , , |
Format: | Article |
Language: | English |
Subjects: | |
Citations: | Items that this one cites Items that cite this one |
Online Access: | Get full text |
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Summary: | ABSTRACT Objective to identify the network and social support in the perception of children with chronic disease. Method qualitative research conducted with eight children with chronic disease, between November 2012 and June 2013 in a public hospital in Paraiba, Brazil. An adaptation of the drawing-story process with theme was used. The data were interpreted by thematic analysis. Results in some moments of life, the child receives different types of support that are offered by strengthened links that make up their social network. But this network has not always proven to be strengthened and able to provide the necessary support to adequately cope with the disease. Conclusion health professionals need to direct their focus on the child, listening to them and their singularities and helping to identify links in their social network which can provide them with the support they need to cope with chronic illness.
RESUMEN OBJETIVO identificar la red y el apoyo en la percepción del niño con enfermedad crónica. MÉTODO investigación cualitativa, realizada entre noviembre de 2012 y junio de 2013, en un hospital público de Paraíba, Brazil, con ocho niños con diagnóstico de enfermedad crónica. Se utilizó una adaptación del procedimiento del diseño-historia con tema. Los datos fueron interpretados por medio de análisis temático. RESULTADOS en algunos momentos de la vida, el niño recibe diferentes tipos de apoyo, que son ofrecidos por vínculos fortalecidos que componen su red social. Sin embargo, ni siempre esta red se mostró fortalecida y capaz de ofrecer el apoyo necesario al enfrentamiento adecuado de la enfermedad. CONCLUSIÓN los profesionales de salud necesitan direccionar su mirada para los niños, oyéndolos en sus singularidades y ayudando a identificar eslabones en su red social que puedan proporcionar el apoyo que necesitan para enfrentar la enfermedad crónica.
RESUMO Objetivo identificar a rede e o apoio social na percepção da criança com doença crônica. . Método pesquisa qualitativa, realizada entre novembro de 2012 e junho de 2013, em um hospital público da Paraíba (Brasil), com oito crianças com diagnóstico de doença crônica. Utilizou-se uma adaptação do procedimento de desenho-estória com tema. Os dados foram interpretados por meio da análise temática. Resultados em alguns momentos da vida, a criança recebe diferentes tipos de apoio, que são oferecidos por vínculos fortalecidos que compõem sua rede social. Entretanto, nem sempre, essa rede se mostrou fortal |
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ISSN: | 0104-0707 1980-265X 0104-0707 |
DOI: | 10.1590/0104-07072017006980015 |