Development of an evidence-based decision aid on complementary and alternative medicine (CAM) and pain for parents of children with cancer

Purpose To develop an evidence-based decision aid for parents of children with cancer and to help guide them in the use of complementary and alternative medicine (CAM) for cancer care. Methods This study had a mixed research design. The needs of parents were investigated by survey and focus group. A...

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Bibliographic Details
Published in:Supportive care in cancer 2020-05, Vol.28 (5), p.2415-2429
Main Authors: Jong, Miek C., Boers, Inge, van Wietmarschen, Herman, Busch, Martine, Naafs, Marianne C., Kaspers, Gertjan J. L., Tissing, Wim J. E.
Format: Article
Language:English
Subjects:
Alternative medicine
Analysis
Cancer
Care and treatment
Childrens health
Clinical decision making
Computer-aided manufacturing
Decision making
Decision support systems
Evidence-based medicine
Hypnotherapy
Hypnotism
Medicine
Medicine & Public Health
Meta-analysis
Music therapy
Nursing
Nursing Research
Oncology
Oncology, Experimental
Original
Original Article
Pain
Pain Medicine
Parents & parenting
Pediatric oncology
Pediatrics
Procedural pain
Rehabilitation Medicine
Surveys
Systematic review
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Summary:Purpose To develop an evidence-based decision aid for parents of children with cancer and to help guide them in the use of complementary and alternative medicine (CAM) for cancer care. Methods This study had a mixed research design. The needs of parents were investigated by survey and focus group. A systematic review and meta-analysis were performed on the effectiveness of CAM using Grading of Recommendations Assessment, Development and Evaluation (GRADE). Clinical experts were interviewed and a decision aid on CAM treatment for pain was developed. Results Parents emphasized the importance of reliable information on CAM, focusing primarily on communication and a broad spectrum of complaints related to cancer treatment. The decision aid on CAM for pain included five modalities based on 11 randomized control trials (RCTs): hypnotherapy, mind-body techniques, massage, healing touch, and music therapy. Meta-analysis could be performed on hypnotherapy, which significantly reduced cancer-related procedural pain compared with standard care (MD, − 1.37; 95% CI, − 1.60, − 1.15; P  
ISSN:0941-4355
1433-7339
1433-7339
DOI:10.1007/s00520-019-05058-8