The prevalence and role of coping strategies in the nutritional intake of children born with esophageal atresia: a condition-specific approach

• Published in: Diseases of the esophagus 2019-07, Vol.32 (7)
• Main Authors: Dellenmark-Blom, M, Chaplin, J E, Quitmann, J H, Jönsson, L, Gatzinsky, V, Dingemann, J, Abrahamsson, K
• Format: Article
• Language: English
• Subjects: adaptation; Adaptation, Psychological; Adolescent; Anxiety - etiology; Avoidance Learning; Child; Child, Preschool; coping; Eating - psychology; Emotions; esophageal atresia; Esophageal Atresia - psychology; Feeding Behavior - psychology; feeding difficulties; Female; Focus Groups; Humans; Male; Pediatrics; Pediatrik; Quality of Life; Surveys and Questionnaires
• ISSN: 1120-8694; 1442-2050; 1442-2050
• DOI: 10.1093/dote/doz004

SUMMARY This study describes results of a condition-specific approach to the assessment of coping strategies in nutritional intake situations used by children with esophageal atresia. One hundred three families of children 2–17 years old with esophageal atresia participated (94% response rate). Following standardized focus groups with 30 families, nine coping items were developed, reflecting nine different coping strategies in nutritional intake situations. The coping items were pilot tested by 73 new families and evaluated for feasibility, validity, and reliability. The families also completed a validated condition-specific quality-of-life questionnaire for children with esophageal atresia, which included the scale Eating-Quality-of-life. Data were analyzed using descriptives, between-group analysis, and Spearman's rho (P