Women's experiences of health care providers when choosing flat closure after breast cancer: An interview study

• Published in: European journal of oncology nursing : the official journal of European Oncology Nursing Society 2024-06, Vol.70, p.102613-102613, Article 102613
• Main Authors: Ahlstedt Karlsson, Susanne, Myrin Westesson, Linda, Hansson, Emma, Paganini, Anna
• Format: Article
• Language: English
• Subjects: Breast cancer; Breast reconstruction; Decision making; Flat closure; Kirurgi; Mastectomy; Patient experience; Surgery; Thematic analysis
• ISSN: 1462-3889; 1532-2122
• DOI: 10.1016/j.ejon.2024.102613

The purpose of this study was to explore women's experiences with healthcare providers previous to a flat closure after breast cancer. Data was collected using individual semi-structured interviews by telephone or teleconferencing systems with 18 women who shared their experience with health care before and during flat closure operation after breast cancer or a breast gene mutation. The interviews were transcribed verbatim and analyzed using thematic analysis. The analysis generated three specific themes: (1) Striving to be recognized as a person, (2) Barriers to shared decision making and (3) A need to be empowered, indicating that women's views are not always illuminated and enquired about by health care providers. The care agenda was also more often regulated by norms and standard care than the individual women's intended goals. Furthermore, when the agenda for surgery had been previously set, the women were not presented with viable options to choose from for the upcoming surgery. For these women to influence the reality they face, they have to seek support outside of healthcare. This indicates the important role of patient networks and relatives in empowering the individual women to stand up for their choice and body. In order to offer feasible surgery for women diagnosed with breast cancer or a breast mutation gene, the women's wishes regarding flat closure and what matters to her in her life must be identified. Also emphasized is the need for a more systematic approach in involving the affected women in shared decision-making. •Exploring women's view of encounters with health care when choosing to go flat.•Emphasizing the need of women to be included in the decision-making process.•Illuminates the potential for empowerment found in patient networks.