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Acute hepatic porphyria disease manifestations and daily life impacts in EXPLORE international, prospective, natural history study

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Main Authors: Gouya, L, Balwani, M, Bissell, DM, Rees, D, Stolzel, U, Phillips, J, Kauppinen, R, Langendonk, J, Desnick, R, Deybach, JC, Bonkovsky, H, Parker, C, Naik, H, Badminton, M, Stein, P, Minder, E, Windyga, J, Martasek, P, Cappellini, MD, Ventura, P, Sardh, E, Harper, P, Sandberg, S, Aarsand, A, Alegre, F, Ivanova, A, Talbi, N, Ko, J, Cahana-Amitay, D, Chan, A, Dinh, Q, Penz, C, Simon, A, Lin, T, Anderson, K
Format: Conference Proceeding
Language:English
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ISSN:0168-8278
DOI:10.1016/S0618-8278(19)31179-X