Feeling lucky: hierarchies of suffering and stories of endometrial cancer in a Danish context

• Published in: Sociology of health & illness 2019-06, Vol.41 (5), p.950-964
• Main Authors: Sidenius, Anne, Mogensen, Ole, Rudnicki, Martin, Møller, Lars M. A., Hansen, Helle P.
• Format: Article
• Language: English
• Subjects: Aged; Aggressiveness; Ambivalence; anthropology; Anthropology, Cultural; Attention; Cancer; Cancer Survivors - psychology; cancer survivorship; Chance; Denmark; Emotions; Endometrial cancer; Endometrial Neoplasms - psychology; Female; gynaecological cancer; Gynecological cancer; Hierarchies; Humans; illness narratives; Illnesses; Medical personnel; Medicin och hälsovetenskap; Middle Aged; moral status; Narration; Psychosocial factors; Qualitative Research; Stress, Psychological; Suffering; Survivor; Women
• ISSN: 0141-9889; 1467-9566; 1467-9566
• DOI: 10.1111/1467-9566.12875

Illness stories are a prime analytical way of understanding patient perspectives on cancer. Nevertheless, limited studies have focused on stories of endometrial cancer. An ethnographic study including participant observation and interviews among 18 Danish women with endometrial cancer was conducted to examine prevalent stories and the ways the women responded to them. In this article, the analysis focuses on two exemplary cases, which present a line of issues related to the kinds of experiences that suffering includes. Findings illustrate that feelings of luck were central to the experience of being diagnosed, treated and cured, which was related to the way health professionals framed endometrial cancer as favourable through notions of curable/incurable, trivial and gentle/invasive and brutal, and aggressive/non‐aggressive. Drawing upon the concept of a ‘hierarchy of suffering’, we exemplify how women tended to scale own experiences of suffering against others’, leading some to believe they were not in a legitimate position to draw attention to themselves nor seek help and support, despite adverse physical, psychosocial effects. Thus, feelings of being lucky were intertwined with a sense of ambivalence. We conclude by discussing how suffering arises within a moral context, suggesting that the ways we speak of cancer may make some experiences unspeakable. This calls for increased clinical attention to more diverse narratives of cancer.