Walking function, pain, and fatigue in adults with cerebral palsy: a 7‐year follow‐up study

• Published in: Developmental medicine and child neurology 2009-05, Vol.51 (5), p.381-388
• Main Authors: OPHEIM, ARVE, JAHNSEN, REIDUN, OLSSON, ELISABETH, STANGHELLE, JOHAN K
• Format: Article
• Language: English
• Subjects: Activities of Daily Living; Adult; Adults; Aged; Cerebral Palsy; Cerebral Palsy - complications; Cerebral Palsy - physiopathology; Fatigue (Biology); Fatigue - etiology; Female; Follow-Up Studies; Followup Studies; Humans; Kaplan-Meier Estimate; Male; Medicin och hälsovetenskap; Middle Aged; Mobility; Motor Skills; Muscle Spasticity - etiology; Muscular Strength; Norwegian; Pain; Pain - etiology; Physical Activities; Physical Activity Level; Physical Fitness; Questionnaires; Severity of Illness Index; Social Integration; Statistical Data; Surveys and Questionnaires; Walking
• ISSN: 0012-1622; 1469-8749; 1469-8749
• DOI: 10.1111/j.1469-8749.2008.03250.x

Aim  To compare walking function, pain, and fatigue in adults with cerebral palsy (CP) 7 years after an initial survey. Method  A multidimensional questionnaire was mailed to 226 people with unilateral (hemiplegic) or bilateral (diplegic) spastic CP who had participated in a 1999 survey. People with additional diagnoses were excluded. Special emphasis was placed on participants with deterioration in walking. The questionnaire was the same as in 1999. Results  One hundred and forty‐nine participants (76 males, 73 females; mean age 40y 5mo, SD 10y 7mo, range 24–76y) with a diagnosis of unilateral (n=81) or bilateral (n=68) spastic CP responded. Fifty‐two per cent of all participants reported deterioration in walking function since debut of walking, compared with 39% 7 years previously. In participants with bilateral CP, 71% reported deteriorated walking, compared with 37% of participants with unilateral CP. Participants with deteriorated walking function had greater pain frequency, pain intensity, impact of pain on daily activities, and physical fatigue and reduced balance. The number of people reporting overall mobility problems was almost double compared with 7 years previously. Interpretation  The main finding was an increased prevalence of deteriorated walking, significantly associated with bilateral spastic CP, pain, fatigue, and reduced balance. Rehabilitation programmes addressing these areas are needed.